Thanks Richard. I checked out your previous posts and read about your "Russian Roulette" as well. So I got a piece of history. Thanks and I am anxious to see how you do. Be well. Barb
On Nov 25, 8:54 am, Richard H <[EMAIL PROTECTED]> wrote: > This was a decision that I made with my ONC because of six months > blood transfusions every 3 weeks because of low RBC]'s. After a > transfusion I would increase to above 9 (low normal being 10) and then > decline into the upper 7's. The vacation may be over in Jan. if my Q- > PCR test remains elevated as it was in Nov. > > Richard H. > > On Nov 25, 7:57 am, Barb in AZ <[EMAIL PROTECTED]> wrote: > > > > > Richard, > > Could you please tell me how you came to take a gleevec vacation? I > > am having some severe side effects to the point that I would consider > > another one. I took one for 10 weeks and then returned to 300 mg > > gleevec. I changed oncologists and he wants me back on 400 mg. All > > the symptoms and more are returning.... are you in a trial or is this > > just a decision you made with your oncologist? I would be interested > > in how long you plan to continue and what they test for in the interim > > to monitor you. > > Thanks in advance for your input. > > Barb S. > > DX 5-5-02 > > 400 mg gleevec 6-11-02 > > PCRU 3-17-03 and currently > > Gleevec Break 2-15-05 -5-30-05 > > 300 mg gleevec 5-30-05- 8-07 > > 400 mg again since 8-07 > > Remain undetectable but severe side effects > > Zavie's club #401 > > > On Oct 27, 3:57 pm, Rob <[EMAIL PROTECTED]> wrote: > > > > I have put the CMLHope group on moderation so there will be no spam. > > > > Rob- Hide quoted text - > > > - Show quoted text -- Hide quoted text - > > - Show quoted text - --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
