I am very sorry. I don't know much about what you have asked, but I do
know that if you contact your local Leukemia & Lymphoma Society's Patient
Services Manager, you can get a grant for things like travel and such.
It's a modest sum, but everything helps. If you don't know how to contact
your nearest chapter, www.lls.org will have a finder with contact
information--you can even have a live chat with an LLS representative. I
wish your family the very best. Virginia from California

  ----- Original Message -----
  From: Deb
  To: CMLHope
  Subject: [CMLHope] In Need of Comfort and Encouragement
  Date: Wed, 9 Jan 2008 12:30:47 -0800 (PST)



  My husband of 32 years, Rusty (age 53), was dx in 2001. Gleevec was
  very successful until Dec. 2006, he was then put on Sprycel and was
  making good progress until a few weeks ago when the CML got nasty and
  took a vicious turn. He is now in the hospital about 60 miles from
  home. They are planning to start chemo Friday in hopes of keeping the
  CML at bay until a BMT (mini transplant) can take place in a month or
  so. I know many of you folks out there (both patients and spouses)
  have been through this ordeal and was hoping that you could offer
  some
  words of advice, comfort, tips, prayers, etc. for helping our family
  to get through the rough months ahead. This all seems so
  overwhelming!
  We will be without his income (fortunately I carry wonderful health
  insurance) and have already found that the trips to the hospital are
  draining - physically, emotionally, and financially. Can anyone offer
  tips about applying for Social Security Disability, etc. Any advice
  would be greatly appreciated! Thank you.
  Deb (wife of Rusty)
  
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