Hi Deb, My husband, Cam (age 34) is in a very similar situation. He too was on Gleevec then Sprycel. During the Christmas break he suddenly went into blast crisis and is now receiving induction chemotherapy. They are trying to get him back to chronic phase so that he can receive his bone marrow transplant. It all happened so suddenly and there was not much time to think about anything or plan much. Luckily we have good family support. My parents are taking care of our kids while I am at the hospital with Cam, which is 3 hours from where we live. I am staying with a wonderful friend who has CML and has opened her home to me. The best advice I can give to you right now is just worry about one day at a time. This journey is a monstrous elephant that we can eat, if only one bite at a time. When you think about everything it does become very overwhelming. Just focus on what you need to that will get you through today. Think about tomorrow when it comes.
I'm not sure about your money/insurance issues because I live in Canada. Do keep all the receipts for medical expenses eg. parking, traveling, medication, accomodations, etc. as you can probably use it for a tax deduction later. The hardest part about the ordeal is not seeing our kids but we video chat with them over the computer each night. I pray that all goes well for you and your husband and I will look forward to hearing about his progress. If you would like to talk more my personal email is [EMAIL PROTECTED] Blessings to you, Coralee On Wed, 9 Jan 2008 12:30:47 -0800 (PST), Deb <[EMAIL PROTECTED]> wrote: > > My husband of 32 years, Rusty (age 53), was dx in 2001. Gleevec was > very successful until Dec. 2006, he was then put on Sprycel and was > making good progress until a few weeks ago when the CML got nasty and > took a vicious turn. He is now in the hospital about 60 miles from > home. They are planning to start chemo Friday in hopes of keeping the > CML at bay until a BMT (mini transplant) can take place in a month or > so. I know many of you folks out there (both patients and spouses) > have been through this ordeal and was hoping that you could offer some > words of advice, comfort, tips, prayers, etc. for helping our family > to get through the rough months ahead. This all seems so overwhelming! > We will be without his income (fortunately I carry wonderful health > insurance) and have already found that the trips to the hospital are > draining - physically, emotionally, and financially. Can anyone offer > tips about applying for Social Security Disability, etc. Any advice > would be greatly appreciated! Thank you. > Deb (wife of Rusty) > --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
