Hi there, We are also in Calgary at the Children's hospital. Adam is almost 3 years out from his transplant
Suzanne Adam's mom CML dx'd March 8 '04 MUD BMT Feb 19 '05 cGVHD issues On Jan 9, 5:18 pm, [EMAIL PROTECTED] (Coralee Williams) wrote: > Hi Tony, > > He is being treated in Calgary at the Tom Baker Cancer Center. > > Coralee > > > > On Wed, 9 Jan 2008 18:46:26 -0500, "Tony Lanoue" <[EMAIL PROTECTED]> wrote: > > > Hi Coralee I'm from Canada also I'm just wondering what city your husband > > is > > being treated in Tony .Ps I live near Windsor. > > -----Original Message----- > > From: [email protected] [mailto:[EMAIL PROTECTED] On Behalf > > Of Coralee Williams > > Sent: Wednesday, January 09, 2008 5:35 PM > > To: [email protected] > > Subject: [CMLHope] Re: In Need of Comfort and Encouragement > > > Hi Deb, > > > My husband, Cam (age 34) is in a very similar situation. He too was on > > Gleevec then Sprycel. During the Christmas break he suddenly went into > > blast > > crisis and is now receiving induction chemotherapy. They are trying to get > > him back to chronic phase so that he can receive his bone marrow > > transplant. > > It all happened so suddenly and there was not much time to think about > > anything or plan much. Luckily we have good family support. My parents are > > taking care of our kids while I am at the hospital with Cam, which is 3 > > hours from where we live. I am staying with a wonderful friend who has CML > > and has opened her home to me. The best advice I can give to you right now > > is just worry about one day at a time. This journey is a monstrous > > elephant > > that we can eat, if only one bite at a time. When you think about > > everything > > it does become very overwhelming. Just focus on what you need to that will > > get you through today. Think about tomorrow when it comes. > > > I'm not sure about your money/insurance issues because I live in Canada. > > Do > > keep all the receipts for medical expenses eg. parking, traveling, > > medication, accomodations, etc. as you can probably use it for a tax > > deduction later. The hardest part about the ordeal is not seeing our kids > > but we video chat with them over the computer each night. I pray that all > > goes well for you and your husband and I will look forward to hearing > > about > > his progress. If you would like to talk more my personal email is > > [EMAIL PROTECTED] > > > Blessings to you, > > > Coralee > > > On Wed, 9 Jan 2008 12:30:47 -0800 (PST), Deb <[EMAIL PROTECTED]> wrote: > > >> My husband of 32 years, Rusty (age 53), was dx in 2001. Gleevec was > >> very successful until Dec. 2006, he was then put on Sprycel and was > >> making good progress until a few weeks ago when the CML got nasty and > >> took a vicious turn. He is now in the hospital about 60 miles from > >> home. They are planning to start chemo Friday in hopes of keeping the > >> CML at bay until a BMT (mini transplant) can take place in a month or > >> so. I know many of you folks out there (both patients and spouses) > >> have been through this ordeal and was hoping that you could offer some > >> words of advice, comfort, tips, prayers, etc. for helping our family > >> to get through the rough months ahead. This all seems so overwhelming! > >> We will be without his income (fortunately I carry wonderful health > >> insurance) and have already found that the trips to the hospital are > >> draining - physically, emotionally, and financially. Can anyone offer > >> tips about applying for Social Security Disability, etc. Any advice > >> would be greatly appreciated! Thank you. > >> Deb (wife of Rusty) > > > No virus found in this incoming message. > > Checked by AVG Free Edition. > > Version: 7.5.516 / Virus Database: 269.19.0/1216 - Release Date: 1/9/2008 > > 10:16 AM > > > No virus found in this outgoing message. > > Checked by AVG Free Edition. > > Version: 7.5.516 / Virus Database: 269.19.0/1216 - Release Date: 1/9/2008 > > 10:16 AM- Hide quoted text - > > - Show quoted text - --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
