Thank You all for replying to my message. I really appreciate it. I did talk to my Oncologist and he thinks the pain is not related to Gleevec as most people gets side effect when they start Gleevec but after sometime side effects go away. I did not have any of this pain when I started Gleevec in 2001. This just started 1 year back. So he does not agree with me that this could be Gleevec related.!
I will see if my Oncologist can check into other options like Tasigna/ Nilotinib etc. or at least look into the Pancreas issue. What pain medicine you all take to get rid of the pain. I know taking them long term is not good for kidney/liver. Thanks again for your thoughts. Regards, Rakesh --------- On Mar 21, 4:00 am, nvr2old2rck <[EMAIL PROTECTED]> wrote: > I experience this same situation,,as I am up at 2 am writing this, > But unlike you, I have had this all over achey pain that gets worse at > night or sometimes just wham hits up at night, I have been on > gleevec since 2004. I finally gave in and take a low dose pain med > twice a day,,,and as long as I stay regular on it,,Im golden. Its > when I forget to take it,,I end up with this weird pain. Your not > alone. This med causes some interesting side effects but as long as > its working for us,,, > > Sherri Kappe > > On Mar 20, 4:03 pm, "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> > wrote: > > > > > Hi All, > > > I was diagnosed in 01/2001. I have been taking 400mg Gleevec since > > then. I am in remission by FISH. Still positive by a small number with > > PCR test. The blood work results are great. A little bit low on WBC, > > RBC, Hemoglobin but nothing else abnormal. > > > Last few months I have been suffering from lower back pain, shoulder > > pain and overall body pain in the night when I go to bed. The pain > > starts after 2-3 hours of going to sleep. I feel like I am half awake > > and can not get enough rest. Gleevec is the only medicine I am taking. > > Funny thing is that the pain is only in the night and not during the > > day. I tried several different mattresses to see if it is related to > > it. No luck so far. I tried taking a few medicines like Naproxen, > > Valium etc. but nothing for a long time. These medicines don't help > > either. The problem. My oncologist things this is not related to CML > > or Gleevec. Everything else like X-RAY / MRI of back is normal!. > > > I saw several notes on pain in the group but nothing on pain only at > > night. If any of you are experiencing the same symptoms, please let me > > know. I am curious to know if this is due to Gleevec or something > > else. > > > Best Regards, > > Rakesh Doshi > > Cincinnati, Ohio- Hide quoted text - > > - Show quoted text - --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
