WOW! JUST WOW! That is amazing. What hope you provide!! I have 6 years down and thought I was doing well! I knew of someone at 16 years but never 32. Zero platelets. WOW. Is there any story about you I could read somewhere?
Thanks Skip and keep it up! What ever you are doing it must be good. Barb On Mar 22, 10:59 am, Skip Duffie <[EMAIL PROTECTED]> wrote: > Hello Barb > Yes I have about 32 years with dx cml but we now > believe that I had smoldering Granulocytic Leukemia > for about two years before that... It is now being > investigated.. if this was the case I would now be in > my 34 year with CML but that has to be proven my > Doctor is going to write a paper (so he tells me) on > how a person could live all this time with only one > old fashioned medicine which was called Myleran.. no > transplants, no gleevec, no nilotinib, nothing back in > the early days.. CML was very very rare..In fact I was > only the second patient with it.. the other one who > had it before me passed away after 2.5 years. > I was released from the military with medical release > but no one knew what it was until I went full blown. > It has been an interesting ride..especially when my > platelets count drops to Zero yep zero. > SkipD > dx 32++ years > > --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
