Wow!!! What an inspiration you are!! Thanks for sharing and best wishes on the new medication.
Gay Bratton -----Original Message----- From: [email protected] [mailto:[EMAIL PROTECTED] On Behalf Of Skip Duffie Sent: Tuesday, April 15, 2008 12:34 PM To: [EMAIL PROTECTED]; cmlhope Subject: [CMLHope] Zavie Lottie Group Hello Zavie and all :- just a note to let you know that I may, in a couple of week, be taken off Nilotinib and put on Dasatinib (Sprycel). My Doctor is not happy with the results, but says no worries, I had a chest x-ray today in preparation and will need another BMB within two weeks. The drug is quite expensive, but my drug plan will cover most of it. $5000 for 60 pills. I am not sure if that is the standard price in all drug stores. The doctor also increased my Exjade up to 2000mg a day, that is another very expensive drug. I am fast becomming the 3 million dollar man. MY ferritin count jumped up to 2837 as of last Thursday. Just too many infusions of HGB. I was given an infusion of HGB yesterday and today before seeing the Doctor I was given platelets. I sure hope that this new way of the blood service getting and processing blood products will slow my getting so many infusions, not sure about that. In case you did not know about this process it is called BUFFY COAT . not sure why it is called that.. The two doctors I see are getting my history they plan on doing some type of paper on how I survived so many years without all these modern drugs. In fact my first Hematologists retired this year, gosh he was about my age when we first met, I may have been a couple of years older than he was.. Well that is an update for now... will let you know if anything happens between now and the couple of weeks he takes to make up his mind about changing drugs.. I go back to see him at the end of this month .. Be safe all have a great day, I have been assured that warm weather is to arrive here before August. Skip D Dx'ed 30 ++++ years ____________________________________________________________________________ ________ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
