You do have quite a story! I was only diagnosed in July 2002 and started right away on Gleevec, and it has served me well. I am very grateful! Best of luck to you!!
Dee Hedman Duluth, MN Summer usually is the third week in July up here! --- Gay Bratton <[EMAIL PROTECTED]> wrote: > > Wow!!! What an inspiration you are!! Thanks > for sharing and best wishes on > the new medication. > > Gay Bratton > > -----Original Message----- > From: [email protected] > [mailto:[EMAIL PROTECTED] On Behalf > Of Skip Duffie > Sent: Tuesday, April 15, 2008 12:34 PM > To: [EMAIL PROTECTED]; cmlhope > Subject: [CMLHope] Zavie Lottie Group > > > Hello Zavie and all :- > just a note to let you know that I may, in a > couple of > week, be taken off Nilotinib and put on > Dasatinib > (Sprycel). My Doctor is not happy with the > results, > but says no worries, I had a chest x-ray today > in > preparation and will need another BMB within > two > weeks. > The drug is quite expensive, but my drug plan > will > cover most of it. $5000 for 60 pills. I am > not sure > if that is the standard price in all drug > stores. > > The doctor also increased my Exjade up to > 2000mg a > day, that is another very expensive drug. I am > fast > becomming the 3 million dollar man. MY > ferritin count > jumped up to 2837 as of last Thursday. Just too > many > infusions of HGB. > > I was given an infusion of HGB yesterday and > today > before seeing the Doctor I was given platelets. > I > sure hope that this new way of the blood > service > getting and processing blood products will slow > my > getting so many infusions, not sure about that. > In > case you did not know about this process it is > called > BUFFY COAT . not sure why it is called that.. > > The two doctors I see are getting my history > they plan > on doing some type of paper on how I survived > so many years without all these modern drugs. > In fact > my first Hematologists retired this year, gosh > he was > about my age when we first met, I may have been > a > couple of years older than he was.. > > Well that is an update for now... will let you > know > if anything happens between now and the couple > of > weeks he takes to make up his mind about > changing > drugs.. > I go back to see him at the end of this month > .. > Be safe all have a great day, I have been > assured that > warm weather is to arrive here before August. > > Skip D > Dx'ed 30 ++++ years > > > > > ____________________________________________________________________________ > ________ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. > http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > > > > > ____________________________________________________________________________________ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
