Hello Skip, Thanks for the update. Sorry to hear that you have to switch drugs again, I know it must be frustrating. Do you know what dose they will put you are to start out with?
I ask, because I am on only 50 mg once a day of Sprycel and I seem to be managing quite well. My Hgb is a bit low, but all other counts are very good (of course I do not have nearly the experience you have..) My fingers are crossed that you do well. Love and prayers, Cheryl-Anne On Apr 15, 1:34 pm, Skip Duffie <[EMAIL PROTECTED]> wrote: > Hello Zavie and all :- > just a note to let you know that I may, in a couple of > week, be taken off Nilotinib and put on Dasatinib > (Sprycel). My Doctor is not happy with the results, > but says no worries, I had a chest x-ray today in > preparation and will need another BMB within two > weeks. > The drug is quite expensive, but my drug plan will > cover most of it. $5000 for 60 pills. I am not sure > if that is the standard price in all drug stores. > > The doctor also increased my Exjade up to 2000mg a > day, that is another very expensive drug. I am fast > becomming the 3 million dollar man. MY ferritin count > jumped up to 2837 as of last Thursday. Just too many > infusions of HGB. > > I was given an infusion of HGB yesterday and today > before seeing the Doctor I was given platelets. I > sure hope that this new way of the blood service > getting and processing blood products will slow my > getting so many infusions, not sure about that. In > case you did not know about this process it is called > BUFFY COAT . not sure why it is called that.. > > The two doctors I see are getting my history they plan > on doing some type of paper on how I survived > so many years without all these modern drugs. In fact > my first Hematologists retired this year, gosh he was > about my age when we first met, I may have been a > couple of years older than he was.. > > Well that is an update for now... will let you know > if anything happens between now and the couple of > weeks he takes to make up his mind about changing > drugs.. > I go back to see him at the end of this month .. > Be safe all have a great day, I have been assured that > warm weather is to arrive here before August. > > Skip D > Dx'ed 30 ++++ years > > > ____________________________________________________________________________________ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. > http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
