Greenie I took a gleevec break for 10 weeks because of severe side effects. Mind you, this was after consultation with my oncologist and Dr. Drucker. I was and had been PCRU for 4 years. I returned to 300 mg gleevec and still had the side effects. They are all the ones this line of posts has mentioned except nausea. I took my pills at night so I could sleep through those side effects. I am now on tasigna with great relief and have NO side effects. My best guess is that if you are on meds for depression or working on solving that issue, a 10-14 day break might not tell you anything. It takes that long for depression meds to build up/get out of the system.And if you are on the depression meds, would going off gleevec really give you a true reading of what the cause is? I don't know. I have not suffered with this demise but I have family members who do. My best wishes for solutions to this. I know it can be debilitating. The break from gleevec did nothing to my PCRU status. I would consult with your doctors and not do it on your own..... My side effects would cycle. When one would finish another would show up. The worst was joint effusion. The pain was unbearable. And it didn't cycle. It was there 24/7. The other was count suppression- exhaustion and fatigue. I thought I was going to have to quit work.. For a time, I investigated doing the transplant just to get it fixed once and for all. I wish everyone well.,..
Barb Stanley 57 DX 5-5-2002 age 51 Hydroxurea 5-5-02-6-3--02 Gleevec 400 mg 6-11-02 MMR 8-1-02 CCR 12-10-02 PCRU 3-17-03 Gleevec break: Feb. 15 - May 1-2007 (severe side effects) Gleevec 300 mg. May 1 - Dec. 15- 2007 800 mg tasigna Dec. 27 -Jan 12 ( stopped because of side effects) 400 mg tasigna Jan 20 - present (NO SIDE EFFECTS) Continuing strong PCRU > > Jeanie, > > Do you know of anyone in our group that has taking a 10 to 14 day vacation > from Gleevec and did anything happen? Maybe if I take a break from it for a > few weeks that will tell me for sure if that's the problem. Chicago and told > me in the pass don't do it. Easy for them to say. I think that this has to > be my problem. For crying out load 6 1/2 years and no side effects then I > get my self over heated and BANG all these problems. As the day goes by > late afternoon I start feeling better, by bed time I'm O. K.. Sleep good all > night then wake up and in 10 min. I feel like you know what. > > I'm trying to see the cancer Doctor here in Springfield, he's an O. K. guy. > But he's all booked up. The nurse is going to try to get me in. I say the > hell with the antidepressants give me enough Xanax to take 2 times a day and > a good nausea pill to get me to the afternoon. I hope he can give me some > good information. I take my Gleevec at dinner time, I use to take it in the > morning, I've tried lunch, nothing works. Some how during the night when I'm > asleep something goes a muck, I get between 7 and 8 hours sleep. Maybe I > need to get up in the middle of the night, stay up for a few hours then go > back to bed, hell I don't know. And I though Interferon was bad. I tried > pot a couple times back in the 70's I didn't like it but they should make it > legal for us folks that have this kind of problem. I read that it work good > for people with cancer. > > Thanks to everyone for their help with the side effects that I'm having and > your input. > > Greenie > --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
