Hello! I don't post much, but I really need some help here. To make a long story short I was disagnosed 3 years ago in August 2005 with cml at Mayo Clinic at first I was diagnosed by a local oncologist with myleofibrosis at this time I was a month past my 37th birthday. That doc sent me on to Minnesota where they did another bmb and found that I had the philly chromosome. I started gleevec 400 mg right away and was monitored by a doc from Indy and he kept in touch with Mayo. I responded great at first, at diagnosis I was 98% philly + with in 3 months I was down to lower digits and Mayo was very happy and told me they would see me in 6 months, well by December my white count went too low so my Indy doc had me taking gleevec everyother day. This bounced my white count back up but it also started my phiily's to increase and my platelets to rise. So when I went back to Mayo in March 2006 the philly's were on the rise so they increase the gleevec to 800 mgs and monitored me very close and I was getting every other week shots for the low white count until finally by Sept 2006 I was finally zero with my FISH test. So since I have stayed on 800mgs then they started doing a pcr test and I have yet to reach zero I am at 0.05% I have the FISH and the pcr test done every 3 months, I have blood drawn and sent up to Mayo then I drive 8 hours from Indiana to get my results (crazy!) I have a tendency to go up a little then 3 months later go down then 3 months I go up a little then back down, they gave me a graph so I could see this. I have been zero on the FISH since 2006 and they tell me that this is the test that they really go by but now the Mayo doc tells me he wants me to switch from gleevec to dasatinib. My Indy doc and me talked about it before and we both agreed that "if it ain't broke don't fix it" so Mayo is letting me decide what to do but they highly recommend the switch. I have very few side affects with the gleevec and the Mayo doc told me all the side affects from the dasatinib which totally freaked me out. My husband thinks I should stay on the gleevec and so do I, but I just don't know if that really is the right decision and that's where I need some help here! Anyone's opinion would be greatly appreciated.
Thanks! Sheila --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
