Boy, I love my chocolate milk. But while I was an IKE refugee I just got completely away from it. I was pleasantly surprised when all the bloating I've dealt with on Gleevec went away. Glad I didn't part with my "normal" size pants! And yes, I think the diarrhea was much better as well.
I don't drink any caffeine at all and haven't in about 20 years. (Just as a side note some medications make me drowsy that aren't supposed to make you drowsy. As one of my docs and I discussed it's a pretty good bet that 100% of the people taking any drug in a clinical trial consume some amount of caffeine so being a member of this particular minority means you are your own guinea pig on some things.) As it happens I stopped caffeine because I was able to tie it to my life-interrupting diarrhea way back after my HIV diagnosis but long before I started any meds. How many people have a cup of coffee in the morning and head straight to the toilet? I do get muscle cramps and I am going to see if they correlate with my occasional cravings/consumption of chocolate. Yes, I know there's some caffeine in chocolate I just never drink caffeinated beverages. Curse you, Milton Hershey! The only thing that occurs to me is that caffeine is a vascular constrictor which makes it useful fighting headaches. But makes it a dumb thing to put in "fitness" drinks IMHO. Maybe that has something to do with it. Patrick ----- Original Message ----- From: Jim Carlson To: [email protected] Sent: Wednesday, November 19, 2008 4:41 PM Subject: [CMLHope] Re: Cramps - arms & legs Hi Suzieq, I've been on gleevec for 74 months. I was diagnosed with CML on Sept 16, 2002. I had leg, arm and hand cramps until about 1 year ago when my cramps suddenly stopped for a few days and then started up again. I thought back on what was different for me on those days and realized that I did not have any caffeine. I stopped caffeine drinks and the cramps stopped. I seldom have caffeine anymore and when I do, the cramps appear again. I had been taking calcium for most of the six years but it didn't do much for my cramps, but I am a vegitarian (almost vegan) so it helped there. A couple of years ago, I discovered a similar situation with dairy products causing my diarrhea. The philosophy that works for me is: No Caffeine - No Cramps No Dairy - No Diarrhea. Jim > Another thing......I talked to her about the muscle > cramps....as > I've been having them in other places lately....like > under my right > arm (strange) & lower back....besides the usual leg > and hand cramps. > I told her that I had kicked up the calcium....she said > that that was > not the problem......it's the > "drug"......Hmmmmm......they've not > admitted that before, either. Could they actually be > learning > finally????? > > Love, Suzieq > Counting down to my 5 yr. CML anniversary in Jan. > > --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
