i too have a rash and see dr. o. but i take ski-606. when i was taking gleevec the only thing that helped was steriod pack to clear it up. . i went on a gleevec holiday for 4 months without any problems.i then went on to the pr1 vaccine with no side effects for 4 months when that finnished . again i was off all drugs for 9 months before starting ski-606 on 9-06. i just started a uncontrolable rash 4 months ago. i now see dr.cohen a dermatologist at mdanderson and we are trying other options then using the steriod packs..
On Nov 28, 12:55 pm, Ann Jessup Gulledge <[EMAIL PROTECTED]> wrote: > Greetings to all and Happy Thanksgiving for those of us in the US! > > I've been a member of this group for some time, but I mostly lurk these > days. I do appreciate all of the very knowledgeable people who frequently > share their comments with others. > > My husband David was diagnosed with CML in June 2003. He started on 400mg of > Gleevec. We see Dr. Susan O'Brien at MD Anderson twice yearly. A little > over two years ago, she increased his Gleevec dose to 800mg because he had > not yet reached PCR undetectable. At his next test, he was at zero and has > been for all subsequent tests. > > Starting about six months ago, David began experiencing horrible rashes on > his face. It looks like Herpes but after three biopsies, that has not proved > to be the cause. While we've been able to keep the rash at bay, we have not > been able to eliminate it entirely. None of the biopsies have given us any > information regarding for 4 months is causing this. David has been tested > for allergies and that test was also negative. > > Our local dermatologist has consulted with Dr. O'Brien and she has > offered David the option of going off Gleevec for 8 weeks to see if that > helps with the rash. The prospect is both exciting and scary! I know I've > read that some of you have taken "holidays" from Gleevec. Can you share with > me the risks involved? Will David have terrible side-effects when he goes > back on the drug? Will the drug continue to work as well as it is now? > > I just want to be confident we make an informed decision about > this. Psychologically speaking, I think this would do David a world of good, > but I don't want to mess up a good thing. > > Thanks for any advice you can share. > > Ann Gulledge > wife to David --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
