Hi Kelly and so sorry to hear about your troubles. It seems that is one of our worries; our insurance and is it going to pay. I know it has been one of mine, but it always gets pain somehow. So, hang in there. I think Novartis will give you the meds free if you don't have insurance. You just have to contact them. PSI helped pay my co-payment for a while when I needed it; they are great! The Leukemia Society will also help out. You just have to make some calls and see who will help. Also try for Medicaid. I think you can have a house and car. Good luck for the New Year. Blessings. Jeanie<3 In a message dated 1/1/2009 3:27:26 P.M. Central Standard Time, [email protected] writes:
Hi Everyone! I hope everyone had a nice Christmas and New Years. I believe I mentioned before that I was taken off of Gleevec 400 mg q.d. in October and started Sprycel 70 mg x2 q.d. I was absolutely miserable on the Sprycel. I was so full of fluid, it was miserable to even eat not to mention the fact I had conversational dyspnea (gasping for breath between words). Nevertheless, I had to stop the Sprycel Christmas Eve. I had a BMB in early December and evidently still showed 0 PCRU. Yesterday (New Years Eve), my husband was laid off from work - no warning - and was informed our insurance coverage ceased the same day. We have no secondary insurance. I have 2 bottles of Sprycel that I can't take and no money to go to the doctor. I get disability payments through long-term disability insurance provided through my previous employer, whom I just found out was just taken over by another company starting the first of the year. When it hits the fan - it really hits the fan, eh? I don't even know if my disability insurance will continue or not. So. I will be busily cancelling all of my doctor appointments. I called in every prescription I had yesterday and the insurance still paid their portion. Quite frankly, I have no idea where to turn. I had to laugh.........just when you think it couldn't get any worse.........My dog had some type of stroke or something - she's my buddy - a little Boston Terrier - I took her to the vet and he explained what was going on and put her on steroids. He was going to do every test known to dogkind down to damn near brushing her teeth when I put my foot down and he knocked $100 off the bill (it still cost me $168, but this was before I had a clue my husband was getting laid off). I could not bear the thought of her suffering and me standing idly by doing nothing. She is doing very well and seems to be recovering nicely. So, back to me. What do I do? Apply for Medicaid? Probably can't have a house or a car to qualify......sheesh. On a BRIGHTER note, my mom got my husband and I airfare and hotel reservations for the 3rd week in January in Lauderdale by the Sea, Florida. Can't back out or she loses her money. So, I DO have something to look forward to. How long does it take for the CML to come back when you take a drug holiday (I know, everybody is different - I just need an estimate). Honest, I'm not crying in my soup. I am still a little too shell- shocked to even react, other than hysterical, inappropriate laughter. I live in Ohio, so if anyone knows of any clinical trials, etc., please let me know. Thank you for being here! Kelly **************New year...new news. Be the first to know what is making headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026) --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
