Kelly Here is the URL for Novartis patient asistance program. I was approved when it first came out - and then didn't need it later. Cut and paste this URL in your browser. Go and investgate this option and good luck.
http://www.novartisophthalmics.com/info/resources/patient-assistance-program.jsp?usertrack.filter_applied=true&NovaId=3350119503252098322 Also, no matter who your husband's company is - they must offer you COBRA. I know it might be expensive ( I had it for 7 months at $489 a month) And I don't know where you live, but every state has an assistance program. Arizona is called AHCESS . Check out your state insurance comission for it. Best of luck and please, please let us know how you are doing. My best to you. Barb > --- On Thu, 1/1/09, kellyelise <[email protected]> wrote: > > From: kellyelise <[email protected]> > Subject: [CMLHope] where to turn? > To: "CMLHope" <[email protected]> > Date: Thursday, January 1, 2009, 4:27 PM > > Hi Everyone! > > I hope everyone had a nice Christmas and New Years. I believe I > mentioned before that I was taken off of Gleevec 400 mg q.d. in > October and started Sprycel 70 mg x2 q.d. I was absolutely miserable > on the Sprycel. I was so full of fluid, it was miserable to even eat > not to mention the fact I had conversational dyspnea (gasping for > breath between words). Nevertheless, I had to stop the Sprycel > Christmas Eve. I had a BMB in early December and evidently still > showed 0 PCRU. Yesterday (New Years Eve), my husband was laid off from > work - no warning - and was informed our insurance coverage ceased the > same day. We have no secondary insurance. I have 2 bottles of Sprycel > that I can't take and no money to go to the doctor. I get disability > payments through long-term disability insurance provided through my > previous employer, whom I just found out was just taken over by > another company starting the first of the year. When it hits the fan - > it really hits the fan, eh? I don't even know if my disability > insurance will continue or not. So. I will be busily cancelling all of > my doctor appointments. I called in every prescription I had yesterday > and the insurance still paid their portion. Quite frankly, I have no > idea where to turn. I had to laugh.........just when you think it > couldn't get any worse.........My dog had some type of stroke or > something - she's my buddy - a little Boston Terrier - I took her to > the vet and he explained what was going on and put her on steroids. He > was going to do every test known to dogkind down to damn near brushing > her teeth when I put my foot down and he knocked $100 off the bill (it > still cost me $168, but this was before I had a clue my husband was > getting laid off). I could not bear the thought of her suffering and > me standing idly by doing nothing. She is doing very well and seems to > be recovering nicely. So, back to me. What do I do? Apply for > Medicaid? Probably can't have a house or a car to qualify......sheesh. > > On a BRIGHTER note, my mom got my husband and I airfare and hotel > reservations for the 3rd week in January in Lauderdale by the Sea, > Florida. Can't back out or she loses her money. So, I DO have > something to look forward to. > > How long does it take for the CML to come back when you take a drug > holiday (I know, everybody is different - I just need an estimate). > > Honest, I'm not crying in my soup. I am still a little too shell- > shocked to even react, other than hysterical, inappropriate laughter. > I live in Ohio, so if anyone knows of any clinical trials, etc., > please let me know. > > Thank you for being here! > Kelly --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
