Hi Kelly: Take one thing at a time. Your husband should get unemployment, and sometimes its almost near what you got as a pay. With all your problems, you should apply for permanent disability if your long term runs out. I know your job covers you for a little while on the temporary disability. I know this is how it works in NJ. You are a strong person, and have had to do a lot of things to survive through the past year or so. Your medication is something you have to check on with regard to getting it for free. I think you will qualify. They base it on your finances. When my husband was out of work, we were fortunate enough to pick-up the COBRA Ins. We did that for a year, but it cost us over $8000.00 for the year, and Novartis gave me my Gleevec for free until my husband went back to work. I know its tough with the economy and people getting layed off. If I can think of something or find something out for you I will let you know. Keep The Faith, something always works out. Suzzie
--- On Thu, 1/1/09, kellyelise <[email protected]> wrote: From: kellyelise <[email protected]> Subject: [CMLHope] where to turn? To: "CMLHope" <[email protected]> Date: Thursday, January 1, 2009, 4:27 PM Hi Everyone! I hope everyone had a nice Christmas and New Years. I believe I mentioned before that I was taken off of Gleevec 400 mg q.d. in October and started Sprycel 70 mg x2 q.d. I was absolutely miserable on the Sprycel. I was so full of fluid, it was miserable to even eat not to mention the fact I had conversational dyspnea (gasping for breath between words). Nevertheless, I had to stop the Sprycel Christmas Eve. I had a BMB in early December and evidently still showed 0 PCRU. Yesterday (New Years Eve), my husband was laid off from work - no warning - and was informed our insurance coverage ceased the same day. We have no secondary insurance. I have 2 bottles of Sprycel that I can't take and no money to go to the doctor. I get disability payments through long-term disability insurance provided through my previous employer, whom I just found out was just taken over by another company starting the first of the year. When it hits the fan - it really hits the fan, eh? I don't even know if my disability insurance will continue or not. So. I will be busily cancelling all of my doctor appointments. I called in every prescription I had yesterday and the insurance still paid their portion. Quite frankly, I have no idea where to turn. I had to laugh.........just when you think it couldn't get any worse.........My dog had some type of stroke or something - she's my buddy - a little Boston Terrier - I took her to the vet and he explained what was going on and put her on steroids. He was going to do every test known to dogkind down to damn near brushing her teeth when I put my foot down and he knocked $100 off the bill (it still cost me $168, but this was before I had a clue my husband was getting laid off). I could not bear the thought of her suffering and me standing idly by doing nothing. She is doing very well and seems to be recovering nicely. So, back to me. What do I do? Apply for Medicaid? Probably can't have a house or a car to qualify......sheesh. On a BRIGHTER note, my mom got my husband and I airfare and hotel reservations for the 3rd week in January in Lauderdale by the Sea, Florida. Can't back out or she loses her money. So, I DO have something to look forward to. How long does it take for the CML to come back when you take a drug holiday (I know, everybody is different - I just need an estimate). Honest, I'm not crying in my soup. I am still a little too shell- shocked to even react, other than hysterical, inappropriate laughter. I live in Ohio, so if anyone knows of any clinical trials, etc., please let me know. Thank you for being here! Kelly --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
