wow, no meds for 2.5 years after gleevac stopped. I had a fantastic response to the Gleevac, immediately knocked my WBC from 128,000 down to 4.7 thousand now. Been off Gleevac for 2 weeks and he's going to start me on Spyrecel which I have to pick up at the cancer center, not the pharmacy. He said he didn't understand why. Anyway, my last couple BCR-ABL was 0.0000000. Gleevac level was 1500, normal is anything above 1500 per hematologist but due to eye bleeds (bilateral) he said no more Gleevac. Best of luck to you and may you continue to remain in cytogenic remission.
--- On Wed, 12/9/09, Tony Lanoue <[email protected]> wrote: From: Tony Lanoue <[email protected]> Subject: RE: [Possible Spam][CMLHope] Eye bleeds To: [email protected] Date: Wednesday, December 9, 2009, 10:39 PM 2 1/2 years on nothing are your counts stable or are they slowly rising, because maybe the Gleevec did cure you, it has in some.Please keep us posted. Tony From: [email protected] [mailto:[email protected]] On Behalf Of [email protected] Sent: December-09-09 8:49 PM To: [email protected] Subject: [Possible Spam][CMLHope] Eye bleeds Thanks for the post, Maggie May regarding eye bleeds. I had 2 1/2 yrs on gleevec after diagnosis on Feb 14, 2005. Then a brain bleed with many eye bleeds beforehand caused me to stop. I have been on nothing for 2 1/2 more years, still in cytogenetic remission, but soon will have to go back to something unless God intervenes, which is entirely possible. We are choosing sprycel when the time comes. Let me know how it goes for you! Susan Zimmerman -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
