Sean, I understand it was at your doctor's suggestion but it is your decision. Only you know what the meds do to you..... I went through living hell on the Gleevec and endured it for almost 6 years but the Gleevec was doing me more harm than good....it was just too much suffering and I stood it as long as I could. I have recently started taking Sprycel....and I am terrified, but I also have emphysema so I'm worried about the pleural effusion. I had everything else with Gleevec, the puffy eyes but not fluid retention around my heart or lungs. My theory is, if it ain't broke, don't fix it. The Gleevec was working with little side effects. I would think about it especially if you are having the fluid build up around your lungs. I wish you well. Love,Peace,Hope & Prayers, pat
On Mar 15, 8:26 pm, Sean <[email protected]> wrote: > On Mar 15, 3:19 pm, "[email protected]" <[email protected]> > wrote: > > > Sorry but I'm not understanding why you switched drugs if you were CCR > > on the gleevec. I would stick with the one that had the less side > > effects. Just staying alive is more important to me than reaching the > > Big Zero and the Gleevec has done that for you. Just my 2 cents...my > > situation is totally opposite of yours. > > Really it was my doctor's suggestion, and I didn't realize that PCRU > was that statistically insignificant for relapse from where I already > was. But I totally agree that quality of life is most important. I'm > not sure I can switch back to Gleevec. I suppose I could, but I think > I prefer to lower Sprycel dose (no nausea without food like I had with > Gleevec) if it works just as well. -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
