Hi Pat: I started out taking the Sprycel at night because I was used to taking the Gleevec at night to sleep through the worst of the side effects. I have found that if I take the Sprycel after 4:00 p.m., I can't lie down to sleep - I will cough and cough and cough. PE? Probably. If I take it around 1 or 2:00 p.m., I do MUCH better. I am also most active around this time so I drink more fluids and probably flush out more fluid. I've had to change my diet to include more fresh fruit, yogurt, acidophylus capsules, more water, Boost with protein - cut out so much soda, soda really seems to impact my overall wellbeing (makes my spleen hurt). I have found if I drink hot green tea with honey and take a loratadine - after sitting up for awhile - I can knock the coughing out and go to sleep. I know when I am filling up with fluid because if I eat even a small meal, I am just miserable, like I ate a whole turkey or something. I avoid salt and processed foods as much as possible. I get headaches. I even wake up with headaches. But, I just treat them with Advil and if that doesn't cut it, I take a Klonopin to relax and that seems to work. As you can see, I've tried just about everything to make this journey more tolerable - and compared to the Gleevec, this is a cake walk.
Good luck! Kelly On Mar 22, 6:56 pm, "[email protected]" <[email protected]> wrote: > -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope To unsubscribe from this group, send email to cmlhope+unsubscribegooglegroups.com or reply to this email with the words "REMOVE ME" as the subject.
