Beth...you might try Sprycel....I could not take either Gleevec or Tasigna...see below. Tom in KY. Tom Dunham, BD:8/1941 DX CML 12-23-2008 MDA Protocol: Tasigna-400mg; 2xday-1/09 Q PCR bone@ 0.17 7/09 Acute Pancreatitis-7/5/09 Stopped Tasigna-7/13/09 Q PCRU blood-7-29-09 ! Started Gleevec-400mg/day-7/31/09 Developed rash ~ 8/19/09 Rash treated with Steriods..improvement Rash worsens~9/22/09 Stopped Gleevec-9/28/09 Restarted Gleevec @300mg/day-10/8/09 Stopped Gleevec-10/13/09-toxic rash\ Q PCR bone-0.05 Started Sprycel @ 100mg/day-10/20/09 Some bi-lateral peripheral neuroapathy in feet Zavie Miller's Zero Club 1292 In a message dated 7/12/2010 1:22:02 P.M. Eastern Daylight Time, [email protected] writes:
Best wishes to you. Know that these side effects will calm down when your body adjusts to the drug. I also just became diabetic but am determined to beat it with proper diet. I am on a pill at present for the diabetes. Hope to come off it soon. Blessings, Susan In a message dated 7/12/2010 1:08:33 P.M. Eastern Daylight Time, [email protected] writes: Hello out there! My name is Beth and I am 48 and was diagnosed with CML on February 12th, 2010. I ws placed on Gleevec and tried for 2.5 months but was unable to tolerate the side effects so I have been on Tasigna for the last 6 weeks....LIver enzymas 3X normal and have become diabetic, needing to take insulin at night with the chemo...Have been on 200 Mill. a day, half a dose, and just moved up to 300mgs two days ago..lots of body pain and nausea onthe higher dose. I hope it calms down...I am here to share hope with others who are on this journey. It has been a scarry time. I know I am still adjusting.. Hope to hear from someone out there. Take care and have a great day! Beth -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
