Blessings to your Susan.  Hang in there. I hope you tolerate  Sprycel.  It 
is working good for me.
Jeanie<3
 
 
In a message dated 10/31/2010 7:20:36 A.M. Pacific Daylight Time,  
[email protected] writes:

I too have been on a gleevec vacation since May of  2007...over 3 years.  
My bcr/abl test showed last week  
.23.  I had a  brain bleed in May of 2007 and then a serious stroke in 
April of 2010.  I  am going against the doc's
orders to get on  sprycel because I fear another stroke.  I have cavernous 
malformations in  the brain and they have 
no idea why I  stroked.  I seriously think it was exacerbated by the 
gleevec the first  time.  Also many eye bleeds
beforehand.  So I am waiting...still in cellular remission, praise God!  
Diagnosed Feb. 2005.


Susan  Zimmerman




-----Original  Message-----
From: sionito <[email protected]>
To: cmlhope  <[email protected]>
Sent: Tue, Oct 26, 2010 8:25  pm
Subject: Re: [CMLHope] Still on Gleevec Vacation


Awesome!!!!! Sent via BlackBerry by AT&T
 
 -----Original Message-----
 From: Richard H <[email protected]_ 
(mailto:[email protected]) >
 Sender: [email protected]_ (mailto:[email protected]) 
 Date: Tue, 26 Oct 2010 20:34:33 
 To: CMLHope<[email protected]_ (mailto:[email protected]) >
 Reply-To: [email protected]_ (mailto:[email protected]) 
 Subject: [CMLHope] Still on Gleevec Vacation
 
 I received the results of my latest RT-PCR.  Great results overall.  I
 did increase to .0468% but we are working with a threshold of 1%
 before I return to any medication.  I will do it all over in Feb.
 2011.  Next month is my 2 ½ year university starting this vacation
 from Gleevec.
 
 Richard H.
 dxd 2/2003
 400mg Gleevec 3/2003
 Undetectable 11/03
 RT-PCR negative 11/04
 QT-PCR .003 11/05
 RBC 8.
 Gleevec Vacation 11/06-6/07
 Iron infusion 11/06
 Transfusions 12/06-5/07
 QT-PCR .7
 Gleevec 1/08 -5/08
 Procrit 8/08-11/08
 Gleevec Vacation 7/08-Pressent
 QT-PCR .03 4/09
 QT-PCR .015 6/09
 QT-PCR .021 9/09
 QT-PCR .028 1/10
 QT-PCR .01+ 4/10
 QT-PCR .0468 10/10
 
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