Dear CML Warriors: I am very intrested to know how many of you have taken a "Gleevec Vacation". I have just come off a 3 month hiatus, and I felt wonderful. No cramps, muscle spasms, eye bleeds, diarrhea, more energy and much less tired. I am not due for blood work for a few more months.
Any info you can send on this will be appreciated. I pray for each and every one of you daily and hope my prayers are helping you. May God Bless You Always, Sandy Byrd ________________________________ From: Susan Zimmerman <[email protected]> To: [email protected] Sent: Sun, October 31, 2010 10:20:16 AM Subject: Re: [CMLHope] Still on Gleevec Vacation I too have been on a gleevec vacation since May of 2007...over 3 years. My bcr/abl test showed last week .23. I had a brain bleed in May of 2007 and then a serious stroke in April of 2010. I am going against the doc's orders to get on sprycel because I fear another stroke. I have cavernous malformations in the brain and they have no idea why I stroked. I seriously think it was exacerbated by the gleevec the first time. Also many eye bleeds beforehand. So I am waiting...still in cellular remission, praise God! Diagnosed Feb. 2005. Susan Zimmerman -----Original Message----- From: sionito <[email protected]> To: cmlhope <[email protected]> Sent: Tue, Oct 26, 2010 8:25 pm Subject: Re: [CMLHope] Still on Gleevec Vacation Awesome!!!!! Sent via BlackBerry by AT&T -----Original Message----- From: Richard H <[email protected]> Sender: [email protected] Date: Tue, 26 Oct 2010 20:34:33 To: CMLHope<[email protected]> Reply-To: [email protected] Subject: [CMLHope] Still on Gleevec Vacation I received the results of my latest RT-PCR. Great results overall. I did increase to .0468% but we are working with a threshold of 1% before I return to any medication. I will do it all over in Feb. 2011. Next month is my 2 ½ year university starting this vacation from Gleevec. Richard H. dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 RBC 8. Gleevec Vacation 11/06-6/07 Iron infusion 11/06 Transfusions 12/06-5/07 QT-PCR .7 Gleevec 1/08 -5/08 Procrit 8/08-11/08 Gleevec Vacation 7/08-Pressent QT-PCR .03 4/09 QT-PCR .015 6/09 QT-PCR .021 9/09 QT-PCR .028 1/10 QT-PCR .01+ 4/10 QT-PCR .0468 10/10 -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
