> The reason I have labs already is also a reason I would be concerned about > maxing-out Tasigna: I have had base-line, one and three-week EKGs because the > major although uncommon adverse reaction to Tasigna is QT prolongation. > > From Tasigna.com, "Tasigna can cause a possible life-threatening heart > problem called QT prolongation. QT prolongation causes an irregular > heartbeat, which may lead to sudden death." > > I don't know if there is any correlation between pulmonary hypertension and > risk of QT prolongation but it's a question I have to have answered if I were > you. > > Oh yeah, side-effects wise, Tasigna has been a cakewalk compared to Gleevec > so far for me. Although taking Tasigna twice a day on an empty stomach and my > HIV meds twice a day with food has meant that's ALL I do. I've come up with a > wrinkle where I am going to get up in the middle of the night and take > Tasigna and go back to bed so that I just eat my evening meal at slightly > European hour and can even have a cookie or two while I'm watching TV. > > Hang in there, > Patrick > > p.s. The weather in Galveston has been > it's-worth-a-hurricane-in-your-lap-every-couple-of-decades GORGEOUS! It's > important to enjoy what we're given along the way. > >Hi Patrick:
Yes, I do have SEVERE QT prolongation. When I went to see my onc - they did my EKG 4 times before they were satsified enough with the results to NOT have to send me to the cardiac clinic. They believed it was showing a lot of artifact, but, they did show me where I had severe QT prolongation. They were only going to include my pulmonologist in the decision making of my going on Tasigna, but I insisted that my cardiologist be involved in the decision, too. Go figure. lol. Thank you so much everyone!!!! Kelly -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
