I was diagnosed in 11-05 and started on Gleevec but within 2 months had
developed liver function failure. Was started on Sprycel 70mg bid and that
just about wiped out my platlets. Waited for bone marrow to recover and was
put on only 20 mg bid. I have been on that ever since. My pcr tests comes
back UNDECTABLE almost every time they do it every three months. Once in a
great while a very smalll amount is detected. Onocologist said that is the
name of the game. I do have joint pain and have put on 30 lbs but basically
that is the only side effect in 4 years. Best of luck to you.
Carolyn
----- Original Message -----
From: "kneesrbad2" <[email protected]>
To: "CMLHope" <[email protected]>
Sent: Tuesday, March 22, 2011 10:59 PM
Subject: [CMLHope] Just got the bad news, Gleevec out after 7 years!
I don't know what went wrong but my abnormal cells increased 3 fold on
my last BMA. Now going onto Sprycel! I need everyone who is on
Sprycel to give me your quick stories of what to expect with the new
round of side affects from Sprycel. On Gleevec, here is MY list of
side affects, Diarehea, fatique, eye bleeds, water retention, thin
skin, pale skin (burn easily), cramps, sinus operation, pumpkin face,
joint pains, insomnia, etc etc etc.
What am I faced with for side affects on Sprycel? Suppose to start
it next week.
I am a 55 year old, male, Michigan resident, DX'd on my Wedding
anniversary in 2004, in full blast stage with a spleen they were going
to take out immediately and when I say immediately, I mean 3:30 am
with a full siren ambulance to a major hospital but they saved it!! I
was tested for a full Bone Marrow Transplant with my brothers and I
have a 100% match from my younger brother if I need it. I just want
to hear the good, the bad and the ugly from those on Sprycel,
please.
Also, and almost as important to our CML family for one reason or
another I have a few extra bottles of Gleevec 400 mg bottles still
with the seal on it if anyone is interested in talking with me in
private. I would like to help someone who may have a huge co pay on
their Gleevec payments. This will be handled away from this site and
all parties will get to know who the other parties are. I just don't
want these expensive drugs to go to waste because my body decides, the
heck with you, drug change.
Please reply and let me know! Thanks
--
[CMLHope]
A support group of http://cmlhope.com
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