Thannk you for the information. On Wed, Mar 23, 2011 at 4:38 PM, John Kuptz <[email protected]> wrote:
> I was diagnosed in 11-05 and started on Gleevec but within 2 months had > developed liver function failure. Was started on Sprycel 70mg bid and that > just about wiped out my platlets. Waited for bone marrow to recover and was > put on only 20 mg bid. I have been on that ever since. My pcr tests comes > back UNDECTABLE almost every time they do it every three months. Once in a > great while a very smalll amount is detected. Onocologist said that is the > name of the game. I do have joint pain and have put on 30 lbs but basically > that is the only side effect in 4 years. Best of luck to you. > Carolyn > ----- Original Message ----- From: "kneesrbad2" <[email protected]> > To: "CMLHope" <[email protected]> > Sent: Tuesday, March 22, 2011 10:59 PM > > Subject: [CMLHope] Just got the bad news, Gleevec out after 7 years! > > > I don't know what went wrong but my abnormal cells increased 3 fold on >> my last BMA. Now going onto Sprycel! I need everyone who is on >> Sprycel to give me your quick stories of what to expect with the new >> round of side affects from Sprycel. On Gleevec, here is MY list of >> side affects, Diarehea, fatique, eye bleeds, water retention, thin >> skin, pale skin (burn easily), cramps, sinus operation, pumpkin face, >> joint pains, insomnia, etc etc etc. >> >> What am I faced with for side affects on Sprycel? Suppose to start >> it next week. >> >> I am a 55 year old, male, Michigan resident, DX'd on my Wedding >> anniversary in 2004, in full blast stage with a spleen they were going >> to take out immediately and when I say immediately, I mean 3:30 am >> with a full siren ambulance to a major hospital but they saved it!! I >> was tested for a full Bone Marrow Transplant with my brothers and I >> have a 100% match from my younger brother if I need it. I just want >> to hear the good, the bad and the ugly from those on Sprycel, >> please. >> >> Also, and almost as important to our CML family for one reason or >> another I have a few extra bottles of Gleevec 400 mg bottles still >> with the seal on it if anyone is interested in talking with me in >> private. I would like to help someone who may have a huge co pay on >> their Gleevec payments. This will be handled away from this site and >> all parties will get to know who the other parties are. I just don't >> want these expensive drugs to go to waste because my body decides, the >> heck with you, drug change. >> >> Please reply and let me know! Thanks >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> >> > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
