Susan In your email to Karen, you wrote "I also was very concerned to hear about those who had had CML transplants, not kidney". Not exactly sure what you mean by this statement but it sounds like you made a public statement that you aren't concerned about those of us who've had to have a kidney transplant. Maggs
From: Susan Zimmerman <rszim0...@aol.com> To: CMLHope@googlegroups.com Sent: Tuesday, July 26, 2011 4:24 PM Subject: Fwd: [CMLHope] Transplants Hi Karen, Just to clarify, the first post you made did not have your signature on it. I also was very concerned to hear about those who had had CML transplants, not kidney. I may be a candidate down the line for a CML transplant. Thanks for your informative letter. 18's, Susan -----Original Message----- From: Qtk98 <qt...@aol.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Tue, Jul 26, 2011 12:42 pm Subject: Re: [CMLHope] Transplants Hi Marty, I'm not sure why my name is showing up QTK98....that's my screen name, but my name is Karen and that's what you can call me. In any event, I wanted to answer a few questions that you put out there with regards to my response on transplants. My doctor and I did talk about doing a DLI, which is a donor lymphocytes infusion, however my donor cells depleted so quickly that by the time we actually realized it, another transplant was the better chance for a successful graft. However, that did not happen. We had enough frozen stem cells to do another transplant, so that is what we chose to do. That answers your question...i.e., bone marrow or stem cells. Both my transplants were non-myloablative stem cell transplants. One of the conditioning drugs used in my second transplant was Campath, which did depleat my T-cells and that was the reason for all the problems with the virus and pneumonia post second transplant. I had no GVHD after my first transplant, which probably was another sign that things were not going to work, since all the doctors I talk with say that a little GVHD is good.....it's the key to a successful graft. I did not have a kidney transplant, in fact when I responded to Susan's post on transplants, I thought she was looking for people with CML who had transplants, however she wanted to see if anyone with CML had a kidney transplant. In any event I am happy to say I have not had any other problems "organ" wise with this CML nightmare I've been dealing with over the last year, however the drug I'm on right now for the virus can cause significant problems with the kidneys, so I really pray that I don't encounter more problems thru this all. It sounds like you have been thru alot, but I'm very happy to hear that your transplant has worked for 22+ years....and I'm sure you will see many more years to come. I will check out the CML2 group and I wish for you 18's also. Karen-- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
