So glad some others have been off the gleevec, Maggie May! The first dose of dasatinib, (what's the other name for it?) gave me another eye bleed after quitting gleevec. So you can see why I'm skittish, after having two bleeds, one a full-blown stroke. I wish for everyone to enjoy every day as a wonderful gift from God as we take this journey together....Susan
-----Original Message----- From: [email protected] <[email protected]> To: cmlhope <[email protected]> Sent: Sun, Jul 24, 2011 7:03 am Subject: Re: [CMLHope] Transplants Dear Qtk thank you for the well wishes, right back atcha. :) From: Susan Zimmerman <[email protected]> To: [email protected] Sent: Friday, July 22, 2011 11:30 PM Subject: Re: [CMLHope] Transplants Dear Qtk98: I am curious why you went with a transplant two times instead of gleevec? or did you use gleevec or sprycel? I have been without gleevec for over four years now and I need testing again to see how advanced the amount of cells have gotten in my system. Last October they were over 1.0 on the log reduction thing....I risk a brain bleed with any CML medication, so have not gotten back on, against the doc's wishes. Thanks for any further information. Susan (Indiana) -----Original Message----- From: Qtk98 <[email protected]> To: cmlhope <[email protected]> Sent: Fri, Jul 22, 2011 3:39 pm Subject: Re: [CMLHope] Transplants I had 2 transplants for CML, both of which failed. I had the non-myloablative transplants, which means the conditioning chemo used before each transplant was not as harsh as a full blown transplant. I have been told by a recent 2nd opinion doctor that I needed a full blown transplant from day one because the amount of CML cells in my marrow prior to transplant supported that a mini-transplant would not work. I am currently seeking a 3rd transplant, which is probably my last shot at transplant, so I need to be sure this is done right. I hope this information helps you and good luck with your kidney transplants. -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
