Hi Susan, I was diagnosed with CML November, 2008. I was on Gleevec, Sprycel and Nilotinib, all of which decreased my numbers so much that I had to go off and on the meds all the time to allow my numbers to increase. Therefore, I never got a response from the drugs because I was never able to be on them long enough to get a response. I sought out 3 opinions before my transplant and was told, by all three doctors, I needed the transplant. They found a 10 out of 10 match for me thru the Donor Registry and I felt, because I was in relatively good health otherwise, I would do the transplant. The donor cells grafted 95% after the 1st transplant, however then it failed, most likely because my CML cells took over and rejected the donor cells. Since we had some cells frozen from my donor, my doctor decided the best thing to do was give me the remaining cells, but to do it using a different conditioning regimen before transplant. That transplant never grafted and on top of that, because I didn't have an immune system due to the conditioning chemo, I ended up in the hospital for 11 days because of a virus and pneumonia. I'm currently recovering from that. I have now sought out another opinion and there is a chance my sister, who is a half match to me, may be able to be used as my donor. Hope this information helps. Karen
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