I am seeking a kidney transplant. Not a bone marrow transplant. I have CML, as well. Was curious if anyone out there knew of anyone else who has CML who also has had an organ transplant (any organ).
From: Susan Zimmerman <[email protected]> To: [email protected] Sent: Saturday, July 23, 2011 12:05 PM Subject: Fwd: [CMLHope] Transplants Thanks very much Karen and Richard for your help. Congrats Richard on being off as well, and why did you (or they) set 1.0 as your time to go back on? Any particular reason? What areas also do each of you live in? Doctors in Tampa at Moffitt are great where I came from. Now I'm in Indiana where it's not as great. Thanks, Susan -----Original Message----- From: Richard H <[email protected]> To: CMLHope <[email protected]> Sent: Sat, Jul 23, 2011 9:30 am Subject: Re: Fwd: [CMLHope] Transplants I am also curious why you chose a transplant. Susan: Congratulations on 4 Years vacation. I am at 3 years and Feb. My reaing was .5 and my threashold is 1. before I have to make a decision. My next test is in Aug I am quite hopeful with recent history showing an increase of only .1 every six months. Richard H. dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 RBC 8. Gleevec Vacation 11/06-6/07 Iron infusion 11/06 Transfusions 12/06-5/07 QT-PCR .7 Gleevec 1/08 -5/08 Procrit 8/08-11/08 Gleevec Vacation 7/08-Present QT-PCR .03 4/09 QT-PCR .015 6/09 QT-PCR .021 9/09 QT-PCR .028 1/10 QT-PCR .01+ 4/10 QT-PCR .0438 10/10 QT-PCR .05 2/11 Next test Aug. On Jul 22, 10:59 pm, Susan Zimmerman <[email protected]> wrote: > Dear Qtk98: > > I am curious why you went with a transplant two times instead of gleevec? or did you use gleevec or sprycel? I have been without gleevec for over four years now and I need testing again to see how advanced the amount of cells have gotten in my system. Last October they were over 1.0 on the log reduction thing....I risk a brain bleed with any CML medication, so have not gotten back on, against the doc's wishes. > > Thanks for any further information. > Susan (Indiana) > > > > -----Original Message----- > From: Susan Zimmerman <[email protected]> > To: cmlhope <[email protected]> > Sent: Fri, Jul 22, 2011 7:30 pm > Subject: Re: [CMLHope] Transplants > > Dear Qtk98: > > I am curious why you went with a transplant two times instead of gleevec? or did you use gleevec or sprycel? I have been without gleevec for over four years now and I need testing again to see how advanced the amount of cells have gotten in my system. Last October they were over 1.0 on the log reduction thing....I risk a brain bleed with any CML medication, so have not gotten back on, against the doc's wishes. > > Thanks for any further information. > Susan (Indiana) > > -----Original Message----- > From: Qtk98 <[email protected]> > To: cmlhope <[email protected]> > Sent: Fri, Jul 22, 2011 3:39 pm > Subject: Re: [CMLHope] Transplants > > I had 2 transplants for CML, both of which failed. I had the > non-myloablative transplants, which means the conditioning chemo used before each transplant was not as harsh as a full blown transplant. I have been told by a recent 2nd opinion doctor that I needed a full blown transplant from day one because the amount of CML cells in my marrow prior to transplant supported that a mini-transplant would not work. I am currently seeking a 3rd transplant, which is probably my last shot at transplant, so I need to be sure this is done right. I hope this information helps you and good luck with your kidney transplants. > > -- > [CMLHope] > A support group ofhttp://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group athttp://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group ofhttp://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group athttp://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
