This is great news about Tasigna....! I spoke yesterday to a doctor in charge of a clinical trial. He advised me with my history of bleeding in the brain to NEVER take sprycel, said it is well known that it causes bleeding. All my other doctors have been wanting me to go on it! He advised tasigna only, as it is the only one that does not have the slight side effect for those who are prone to have bleeding. Very very important news for me, as I've not been on anything for four and a half years. Gleevec caused bleeding. I am going soon for another bcr/abl test, it's been a year. I am so thankful I'm still in cellular remission. This doctor yesterday said don't wait until you come out of remission because you could go into blast phase. Pray that things come together for me financially to do this. By the way, what side effects come with tasigna???
18's, Susan F. Zimmerman -----Original Message----- From: Suzan Collins <[email protected]> To: cmlhope <[email protected]> Sent: Mon, Oct 31, 2011 9:39 pm Subject: Re: [CMLHope] Tasigna Hi I don't post much. I was dxed in June 2004. I had never reached all zeros before and it always stayed around .004. I had so much trouble with severe side effects from gleevec and sprycel and sprycel also gave me skin ulcers. So he put me on tasigna . I have been on tasigna for nearly 2 years and from the beginning I continued to have trouble with bad side effects two months later. So my doctor decided to put me on 200 mgs once every other day. The side effects declined immensely and my last fish test was all zeros so even though it is only 200 mgs every other day tasigna has kept my CML under control. So good luck. I hope that you can get they same results that I have. Suzan From: kellyelise <[email protected]> To: CMLHope <[email protected]> Sent: Monday, October 31, 2011 8:24 PM Subject: [CMLHope] Tasigna Marty...tweet, tweet? Ha ha ha!! You are so funny!! Anyway....My PA from MDAnderson in compliance with Dr. Cortes have allowed me to take Tasigna @ 200mg daily. It is less that the recommended dose but they are hoping to lessen side effects but at the same time put the CML back under control. I "think" she said my PCR was 0.333% (does that make sense?). I have never come out of remission in 4 years until now (boo!). She also said I am showing no evidence of the Philadelphia chromosome. I have no idea what this all means since I cannot retain anything, but, I am hoping it is good news. Any advice, knowledge, etc., would be greatly appreciated. I am currently in the market for a heme/onc and will be looking 50 miles to the West (Cleveland, OH) or 50 miles to the East (Erie, PA). I asked my NP at CCF for some guidance and hopefully she can provide some. 18s to everyone! Kelly -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
