Thank you Jeanie....Gleevec stopped working for me and am now on Sprycel. I am worried about side effectsss...I have been fighting a very bad rash...hope that is all that pops up. Thanks, Penny On Sunday, March 24, 2013 5:29:27 PM UTC-6, Jeanie wrote:
> Symptoms brain bleed > Nausea headache blurred vision bad balance > Numb tingling and others > Make sure to get your blood checked often > As your counts can drop fast > Jeanie > > Sent from my iPhone > > On Mar 23, 2013, at 11:27 PM, [email protected] <javascript:>wrote: > > Penny, if something was making me wonder if I was having a brain bleed > I would be on my way to the ER. > Patrick > > --- On *Sat, 3/23/13, Penny <[email protected] <javascript:>>* wrote: > > > From: Penny <[email protected] <javascript:>> > Subject: Re: [CMLHope] Tasigna > To: [email protected] <javascript:> > Date: Saturday, March 23, 2013, 9:53 PM > > Hi, > > How do you know if you have had a brain bleed. I just started on Sprycel > 2 weeks ago... Penny > > On Tuesday, November 1, 2011 1:22:54 PM UTC-6, [email protected] wrote: > > > This is great news about Tasigna....! I spoke yesterday to a doctor in > charge of a clinical trial. He advised me with my history of bleeding in > the brain to NEVER take sprycel, said it is well known that it causes > bleeding. All my other doctors have been wanting me to go on it! He > advised tasigna only, as it is the only one that does not have the slight > side effect for those who are prone to have bleeding. Very very important > news for me, as I've not been on anything for four and a half years. > Gleevec caused bleeding. I am going soon for another bcr/abl test, it's > been a year. I am so thankful I'm still in cellular remission. This > doctor yesterday said don't wait until you come out of remission because > you could go into blast phase. Pray that things come together for me > financially to do this. By the way, what side effects come with tasigna??? > > 18's, > > Susan F. Zimmerman > > > -----Original Message----- > From: Suzan Collins <[email protected]> > To: cmlhope <[email protected]> > Sent: Mon, Oct 31, 2011 9:39 pm > Subject: Re: [CMLHope] Tasigna > > Hi I don't post much. I was dxed in June 2004. I had never reached all > zeros before and it always stayed around .004. I had so much trouble with > severe side effects from gleevec and sprycel and sprycel also gave me > skin ulcers. So he put me on tasigna . I have been on tasignafor nearly 2 > years and from the beginning I continued to have trouble with > bad side effects two months later. So my doctor decided to put me on 200 > mgs once every other day. The side effects declined immensely and my last > fish test was all zeros so even though it is only 200 mgs every other day > tasigna has kept my CML under control. So good luck. I hope that you can > get they same results that I have. > Suzan > > *From:* kellyelise <[email protected]> > *To:* CMLHope <[email protected]> > *Sent:* Monday, October 31, 2011 8:24 PM > *Subject:* [CMLHope] Tasigna > > Marty...tweet, tweet? Ha ha ha!! You are so funny!! > > Anyway....My PA from MDAnderson in compliance with Dr. Cortes have > allowed me to take Tasigna @ 200mg daily. It is less that the > recommended dose but they are hoping to lessen side effects but at the > same time put the CML back under control. I "think" she said my PCR > was 0.333% (does that make sense?). I have never come out of remission > in 4 years until now (boo!). She also said I am showing no evidence of > the Philadelphia chromosome. I have no idea what this all means since > I cannot retain anything, but, I am hoping it is good news. > > Any advice, knowledge, etc., would be greatly appreciated. I am > currently in the market for a heme/onc and will be looking 50 miles to > the West (Cleveland, OH) or 50 miles to the East (Erie, PA). I asked > my NP at CCF for some guidance and hopefully she can provide some. > > 18s to everyone! > Kelly > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------ ------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to CMLHope-u...@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope <http://groups.google.com/group/CMLHope> > > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------ ------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to CMLHope-u...@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope <http://groups.google.com/group/CMLHope> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/groups/opt_out. > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/groups/opt_out. > > > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
