Thank you Marty and Susan, You have provided me with some relief....wow, Susan, 200mg every other day? That is great!! I am so glad you are doing well with that. I understand the translocation of the chromosomes which results in the Philadelphia chromosome but I didn't really understand what it meant as far as my prognosis.....so, I guess the absence of the chromosome is a GOOD thing!!
Thank you all for your support!! 18s, Kelly On Oct 31, 11:17 pm, Martin Gartenberg <[email protected]> wrote: > Hi Kelly, > > Let me explain about The Philadelphia Chromosome. I know that it may be > complicated for you to understand but here is a site that can explain it. > > http://www.medterms.com/script/main/art.asp?articlekey=4870 > > The new drugs inhibit the transfer of genetic materials between two > specific Cromosomes and that is what the Philadelphia Chromosome is. > > PCR stands for polymerase chain reaction it is a very sensitive test that > can tell what is going on with CML > > When someone is PCRU that means that there can not be detected any CML in > your cells. > > Kelly, don't you worry. You just hang in there and you must remember > without any of these new drugs, well you know what I mean. > > You must consider yourself very lucky (if that is the right word to use) > None of these drugs were available for me when i had to deal with that bone > marrow transplant. > > You just go out there and enjoy your life > > 18's > > Marty > > > > On Mon, Oct 31, 2011 at 9:24 PM, kellyelise <[email protected]> wrote: > > Marty...tweet, tweet? Ha ha ha!! You are so funny!! > > > Anyway....My PA from MDAnderson in compliance with Dr. Cortes have > > allowed me to take Tasigna @ 200mg daily. It is less that the > > recommended dose but they are hoping to lessen side effects but at the > > same time put the CML back under control. I "think" she said my PCR > > was 0.333% (does that make sense?). I have never come out of remission > > in 4 years until now (boo!). She also said I am showing no evidence of > > the Philadelphia chromosome. I have no idea what this all means since > > I cannot retain anything, but, I am hoping it is good news. > > > Any advice, knowledge, etc., would be greatly appreciated. I am > > currently in the market for a heme/onc and will be looking 50 miles to > > the West (Cleveland, OH) or 50 miles to the East (Erie, PA). I asked > > my NP at CCF for some guidance and hopefully she can provide some. > > > 18s to everyone! > > Kelly > > > -- > > [CMLHope] > > A support group ofhttp://cmlhope.com > > ------------------------------------------------- > > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > > [email protected] > > For more options, visit this group at > >http://groups.google.com/group/CMLHope- Hide quoted text - > > - Show quoted text - -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
