Did u use anything on them? On Dec 9, 2011 1:09 PM, <[email protected]> wrote:
> ** > Yep....and took a long time to heal. They see to go. In one case, the > site of the bump is still "scabby" and seems not to have healed properly. > > In a message dated 12/9/2011 12:08:17 P.M. Eastern Standard Time, > [email protected] writes: > > Were they like large red pumps that stayed around for a Few weeks and they > hurt to touch? > On Dec 9, 2011 10:53 AM, <[email protected]> wrote: > >> ** >> Yes...off and on. Not a real problem though. Tom in KY >> >> In a message dated 12/9/2011 10:52:02 A.M. Eastern Standard Time, >> [email protected] writes: >> >> Has anyone on sprycel run into an acne problem? >> On Dec 9, 2011 10:49 AM, <[email protected]> wrote: >> >>> ** >>> Greenie...thanks for your response. I didn't remain on Gleevec at 300mg >>> long because the rash worsened. Started to affect my fingernails, etc. >>> Dr's at MDA took one look and stopped it. If the Sprycel doesn't work at a >>> lower level I will suggest giving Gleevec another try. Have a great >>> holiday! Tom in KY >>> >>> In a message dated 12/8/2011 5:53:15 P.M. Eastern Standard Time, >>> [email protected] writes: >>> >>> Tom, (1) when you started Gleevec and you received the rash how long >>> did it last? (2) when they dropped you from 400 mg to 300mg did the rash >>> start to go away. I started Gleevec in Feb. of 2000 with 400 mg, I also >>> got the Gleevec rash and being in a study at Chicago they had no idea what >>> to think of it. They gave me a cream to apply to the areas put that did >>> not help. >>> >>> They then dropped me down to 300 mg and I've been on this amount all of >>> these years. The rash lasted for about 2 months then it started to slowly >>> go away and never returned. The rash covered the bottom of my feet, my >>> arms, the top of my hands and all over my chest. And their were little >>> bumps on the palms of hands and the bottom of my feet. I don't know if >>> this info will help but this is what happened to me. Their were only 8 >>> people in my study and I don't have any idea what happened to any of them. >>> I've asked but they won't tell me anything. Hope this can help. >>> >>> greenie >>> >>> In a message dated 12/8/2011 10:48:38 A.M. Eastern Standard Time, >>> [email protected] writes: >>> >>> I have just found out that I have Pleural Effusion and a little >>> Pericardial Effusion apparently from my Sprycel use. I have been on >>> Sprycel for about two years (100mg/day) and noticed some shortness of >>> breath and chest pain. Xrays confirmed that one lung sack was about 30% >>> full of fluid and an Echo Cardiogram confirmed the heart fluid buildup. I >>> have just had a CT exam to further define the problems. A summary of my CML >>> journey is given below. >>> >>> I am fortunate to have great Doctors...one at MD Anderson and one in KY >>> who are heavily involved. >>> >>> I have several questions for those that may have been down this same >>> road... >>> >>> 1. They put me on 50 mg of Prednisone and stopped my Sprycel >>> immediately...suggesting that they will restart it at a lower dose when the >>> fluid clears up. Did anyone out there have this same treatment? How do >>> the lower doses do in controlling the CML? Did anyone have problems with >>> Prednisone? I am generally adverse to taking lots of steroids. >>> 2. Sprycel is my 3rd try at a TKI for CML. I was unable to take Gleevec >>> and Tasigna successfully. If I can't tolerate Sprycel, are there any other >>> experimental drugs that you are aware of that are a possibility? I know >>> MDA has several studies going on in this reguard. >>> 3. Do any of you have Pericardial Effusion....and if so, what was >>> done to treat it? >>> >>> Thanks for any help you can provide. I look at this as just another >>> speed bump in the CML journey and feel fortunate that we have so many >>> options available for treatment. >>> >>> Tom in KY >>> >>> *Tom Dunham, BD: 8/1941* >>> ** >>> DX CML 12-23-2008 >>> MDA Protocol: Tasigna-400mg; 2xday-1/09 >>> On Flecainide for AF...still had frequent episodes >>> Q PCR bone@ 0.17 on 7/09 >>> Acute Pancreatitis-7/5/09 >>> Stopped Tasigna-7/13/09 >>> Q PCRU blood-7-29-09 ! >>> Started Gleevec-400mg/day-7/31/09 >>> Developed rash ~ 8/19/09 >>> Rash treated with Steroids..improvement >>> Rash worsens~9/22/09 >>> Stopped Gleevec-9/28/09 >>> Restarted Gleevec @300mg/day-10/8/09 >>> Stopped Gleevec-10/13/09-toxic rash\ >>> AF returned infrequently >>> Q PCR bone-0.05 >>> Started Sprycel @ 100mg/day-10/20/09 >>> Some AF...increased FLecainde..1, 2x/day >>> Q PCR bone..0.07 >>> Stopped Alcohol…no AF, ½ Flecainide 2x/day >>> Q PCR Blood…Non Detectible-12-13-10 >>> Q PCR Bone..0.01--2-25-11 >>> Q PCR Blood…Undetectible-5-19-11 >>> Reduced Flecainide to 1/2 per day >>> Pleural and pericardial Effusion: stopped Sprycel-12-6-'11 >>> Prednisone 50mg /day to combat PE >>> >>> >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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