Steroids. Right now I am using benzoyl provide gel. On Dec 9, 2011 1:14 PM, <[email protected]> wrote:
> ** > no...didn't find anything that worked...tried cortisone cream, etc..but > didn't seem to work. I have heard of some using a Prednisone dose pack > treatment that may help. > > In a message dated 12/9/2011 1:11:54 P.M. Eastern Standard Time, > [email protected] writes: > > Did u use anything on them? > On Dec 9, 2011 1:09 PM, <[email protected]> wrote: > >> ** >> Yep....and took a long time to heal. They see to go. In one case, the >> site of the bump is still "scabby" and seems not to have healed properly. >> >> In a message dated 12/9/2011 12:08:17 P.M. Eastern Standard Time, >> [email protected] writes: >> >> Were they like large red pumps that stayed around for a Few weeks and >> they hurt to touch? >> On Dec 9, 2011 10:53 AM, <[email protected]> wrote: >> >>> ** >>> Yes...off and on. Not a real problem though. Tom in KY >>> >>> In a message dated 12/9/2011 10:52:02 A.M. Eastern Standard Time, >>> [email protected] writes: >>> >>> Has anyone on sprycel run into an acne problem? >>> On Dec 9, 2011 10:49 AM, <[email protected]> wrote: >>> >>>> ** >>>> Greenie...thanks for your response. I didn't remain on Gleevec at >>>> 300mg long because the rash worsened. Started to affect my fingernails, >>>> etc. Dr's at MDA took one look and stopped it. If the Sprycel doesn't >>>> work at a lower level I will suggest giving Gleevec another try. Have a >>>> great holiday! Tom in KY >>>> >>>> In a message dated 12/8/2011 5:53:15 P.M. Eastern Standard Time, >>>> [email protected] writes: >>>> >>>> Tom, (1) when you started Gleevec and you received the rash how long >>>> did it last? (2) when they dropped you from 400 mg to 300mg did the rash >>>> start to go away. I started Gleevec in Feb. of 2000 with 400 mg, I also >>>> got the Gleevec rash and being in a study at Chicago they had no idea what >>>> to think of it. They gave me a cream to apply to the areas put that did >>>> not help. >>>> >>>> They then dropped me down to 300 mg and I've been on this amount all of >>>> these years. The rash lasted for about 2 months then it started to slowly >>>> go away and never returned. The rash covered the bottom of my feet, my >>>> arms, the top of my hands and all over my chest. And their were little >>>> bumps on the palms of hands and the bottom of my feet. I don't know if >>>> this info will help but this is what happened to me. Their were only 8 >>>> people in my study and I don't have any idea what happened to any of them. >>>> I've asked but they won't tell me anything. Hope this can help. >>>> >>>> greenie >>>> >>>> In a message dated 12/8/2011 10:48:38 A.M. Eastern Standard Time, >>>> [email protected] writes: >>>> >>>> I have just found out that I have Pleural Effusion and a little >>>> Pericardial Effusion apparently from my Sprycel use. I have been on >>>> Sprycel for about two years (100mg/day) and noticed some shortness of >>>> breath and chest pain. Xrays confirmed that one lung sack was about 30% >>>> full of fluid and an Echo Cardiogram confirmed the heart fluid buildup. I >>>> have just had a CT exam to further define the problems. A summary of my CML >>>> journey is given below. >>>> >>>> I am fortunate to have great Doctors...one at MD Anderson and one in KY >>>> who are heavily involved. >>>> >>>> I have several questions for those that may have been down this same >>>> road... >>>> >>>> 1. They put me on 50 mg of Prednisone and stopped my Sprycel >>>> immediately...suggesting that they will restart it at a lower dose when the >>>> fluid clears up. Did anyone out there have this same treatment? How do >>>> the lower doses do in controlling the CML? Did anyone have problems with >>>> Prednisone? I am generally adverse to taking lots of steroids. >>>> 2. Sprycel is my 3rd try at a TKI for CML. I was unable to take >>>> Gleevec and Tasigna successfully. If I can't tolerate Sprycel, are there >>>> any other experimental drugs that you are aware of that are a possibility? >>>> I know MDA has several studies going on in this reguard. >>>> 3. Do any of you have Pericardial Effusion....and if so, what was >>>> done to treat it? >>>> >>>> Thanks for any help you can provide. I look at this as just another >>>> speed bump in the CML journey and feel fortunate that we have so many >>>> options available for treatment. >>>> >>>> Tom in KY >>>> >>>> *Tom Dunham, BD: 8/1941* >>>> ** >>>> DX CML 12-23-2008 >>>> MDA Protocol: Tasigna-400mg; 2xday-1/09 >>>> On Flecainide for AF...still had frequent episodes >>>> Q PCR bone@ 0.17 on 7/09 >>>> Acute Pancreatitis-7/5/09 >>>> Stopped Tasigna-7/13/09 >>>> Q PCRU blood-7-29-09 ! >>>> Started Gleevec-400mg/day-7/31/09 >>>> Developed rash ~ 8/19/09 >>>> Rash treated with Steroids..improvement >>>> Rash worsens~9/22/09 >>>> Stopped Gleevec-9/28/09 >>>> Restarted Gleevec @300mg/day-10/8/09 >>>> Stopped Gleevec-10/13/09-toxic rash\ >>>> AF returned infrequently >>>> Q PCR bone-0.05 >>>> Started Sprycel @ 100mg/day-10/20/09 >>>> Some AF...increased FLecainde..1, 2x/day >>>> Q PCR bone..0.07 >>>> Stopped Alcohol…no AF, ½ Flecainide 2x/day >>>> Q PCR Blood…Non Detectible-12-13-10 >>>> Q PCR Bone..0.01--2-25-11 >>>> Q PCR Blood…Undetectible-5-19-11 >>>> Reduced Flecainide to 1/2 per day >>>> Pleural and pericardial Effusion: stopped Sprycel-12-6-'11 >>>> Prednisone 50mg /day to combat PE >>>> >>>> >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>> >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because 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