Hi Suzieq, I am very happy to hear of your great responce to the gleevec. I'm sure that your test will still continue to be "Hallelujah", as you say. If this continues I think that there is a strong possibility that you can evntually be off of gleevec. I'm praying that this will happen for you. I have known several CML'rs that this has happened to.
At first they felt that if they got off of gleevec their disease might return and still wanted to stay on it like having a safety net. Several finally decided to stop and were sucessful...Then there was my friend Jeff C. who was on Alpha Interferron and was really going through very difficult times. He was on it for many years and his BCR-ABL finally went to as you say "Hallelujah" but he was afraid to stop it. His doctors had told him to first try to take a lesser dose which he started doing and he was still BCR-ABL- so he finally stopped and he is doing fine today. The Alpha Interferron actually burned to S**T out of his Leukemia. Anyway, there always to seem some sort of consequences, at least for me. But first I would like to tell you, if you didn't already know just how lucky you really are. I had to go through a bone marrow transplant more then 22 years ago because in that time there were no drugs like gleevec. I really suffered with getting tons of chemothrapy and total body radiation. The radiation burned my body but I was finally able to recover from all of it. Right now I am sitting in a dialysis center having dialysis. It took all of these years to finally destroy my kidneys, but there is something that I would like to teach you. No matter what you may go through in life you have a life as so do I. Every day is a gift and I learned to live life each and every day. Some days may be "bad" days but the next day it is a "good" day. It's simply how you or I handle it. I wish you a very healthy and happy holiday season, and this coming New Year may you be free of the bonds that hold you. I sincerely hope and pray you are one of those that has beaten this horrible disease. I send you 18's (this means life) Marty Just something to think about On Wed, Dec 14, 2011 at 11:18 PM, Suzieq <[email protected]> wrote: > Hello fellow CML Survivors: > > Well, today was my 6 month's check up with my Hem./Onc. & all was > good. Blood work looks promising & they seemed pleased. Will get the > BCR-ABL in about 10 days or so and I'm praying for another "none > detected".....will be four in a row, I believe....which means 2 years > straight of a big fat "0"! It will be 8 years this coming February > when I started Gleevec........"the wonder drug"..........Hallelujah is > all I can say! > > Oh.....I also received a message from Novartis. I've been with their > "My CML Circle" now for about three years & they have paid my co-pay > for the past couple of years. Well, as of Dec. 31st, they will no > longer be covering that for Gleevec patience who are registered with > them. But, they will cover up to a $150 of Tasignia patients who are > registered with them, > . I don't know if that's a month or what.....since I don't take it, I > don't know a whole lot about it. But, for those of you who do, you > might want to check into this if you need some help each month. > > God bless each and every one of you, > > Suzieq > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
