Since I have had CML I have got cluster headaches. They are bad. But since starting sprycel a few months ago they have slowed down. But a smell a sound can set it off. They only way I can get rid of them is going to the hospital and they give me a shot and oxygen. But if I puke it helps it too.
Sent from my iPhone On Jun 10, 2012, at 5:31 PM, [email protected] wrote: > Hi Jeanie, While I had bad sinus / migraines during the uptake of > sprycel..each time for several weeks, ( i had to go on and off a few times do > to surgeries) I did not have a problem after the initial reentry into the > drug.. After 4 years on the med for you, I am wondering if you have a sinus > infection which can cause bad headache that will not go away without > medication..antibiotics or something to addess it if it is an > infection...also, thinking about other allergens as well > that can cause bed headaches.. worth seeing your doc if it continues...I > would be curious if sprycel would do that after four years without that as a > side effect for you.. good luck and keedp us posted. Beth > > -----Original Message----- > From: ICANDOALLTTC <[email protected]> > To: cmlhope <[email protected]> > Sent: Sun, Jun 10, 2012 7:25 am > Subject: [CMLHope] bad headaches from Sprycel and signs of brain bleed or PE ? > > > Hello all, > I was doing really well on Sprycel but recently developed a really bad > headache that medicine won't cure. It feels like my sinus and hurt behind my > eyes and etc. I was around a person with a really bad cold but she was > coughing and etc so don't know if it is a bug. Anyone had this on Sprycel? > Thanks so much. I have been on Sprycel for about 4 yeas. > Jeanie<3 > > > In a message dated 6/7/2012 5:11:15 P.M. Eastern Daylight Time, > [email protected] writes: > > Hi Kelly, > > Although I have never been on any TKI's I wouldn't know about any depression > that they may cause. What I do know is what I always say. Leukemia is a > disease of both the body and mind. When I had Leukemia I was very depressed, > who wouldn't be? I had a bone marrow transplant more then 23 years ago and > now I have kidney failure and am on dialysis. Am I depressed now? Absolutely > not. I often ask myself why am I not depressed going through dialysis. They > stick two large needles into my arm, and it hurts like hell, and I have to > sit there for four hours but it doesn't depress me. > > As I said Leukemia is a disease of the body and mind. Maybe the TKI's are not > necessarily your problem. The whole thing is to make your mind work in your > favor. You just need to really try focusing on some of the good things in > your life. > > I usually say that you are sitting on one side of a child's See-Saw. There > you are with all of these problems on your shoulders weighing on you and > bringing you down. Now let's say you start putting some of the good things in > your life (if we look hard enough we can find some of these good things) > Start putting these good things on the opposite side and what happens then? > > > Your side starts coming up and some of that burden is lifted right off of > your shoulders... > > I wish you well, and I always end any of my posts with two numbers, 18 which > symbolizes life. > > 18's to you Kelly > > Marty > > > On Thu, Jun 7, 2012 at 7:17 AM, Ricardo Gadelha <[email protected]> > wrote: > > Dear Friends, > The only antidepressant that works with less side effects in my son was > Wellbutrin. > It seems that for the ones who take gleevec this is the only antidepressant > you should take. Talk to your doctor about that. > Bless you all. > > > On Wed, Apr 11, 2012 at 7:49 PM, kellyelise <[email protected]> wrote: > > Does anyone else suffer from severe cycles of depression related to > the TKI's? I have taken all 3 (Gleevec, Sprycel and Tasigna). > > During "vacations" from these drugs and prior to diagnosis, I had > never experienced such severe depressive episodes. > > I'm talking about a tornado touchdown with complete devastation to the > point of suicidal ideation. Can't stop crying, hide from the world and > just die. Bleh! > > They plop me on various antidepressants every time I start a new TKI, > which are totally ineffective and increases various side effects. I am > one of the oddballs that gets rare side effects and I react badly to > just about everything they give me. > > So, I'm probably the oddball who reacts psychologically to these > drugs, too. I can't explain it, control it or avoid it. > > Just curious - anyone else? > Kelly > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > > > > > -- > Ricardo > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
