Hi all, yes I went to the doctor and took a round of amoxcillin. My doctor did chest xray, blood test and heart scan; all negative. My platelets were normal but up to 300; I like to see them in the 250 range; also my WBC were up to 9; like to see them about 5. I have had both Tasigna and Gleevec quit working for me and my platelets and WBC go up in just a few days. No Fun! Seeing my onc soon; will see what he says. Thanks a lot, Jeanie<3 In a message dated 6/10/2012 10:08:49 P.M. Eastern Daylight Time, [email protected] writes:
Since I have had CML I have got cluster headaches. They are bad. But since starting sprycel a few months ago they have slowed down. But a smell a sound can set it off. They only way I can get rid of them is going to the hospital and they give me a shot and oxygen. But if I puke it helps it too. Sent from my iPhone On Jun 10, 2012, at 5:31 PM, [email protected] wrote: > Hi Jeanie, While I had bad sinus / migraines during the uptake of sprycel..each time for several weeks, ( i had to go on and off a few times do to surgeries) I did not have a problem after the initial reentry into the drug.. After 4 years on the med for you, I am wondering if you have a sinus infection which can cause bad headache that will not go away without medication..antibiotics or something to addess it if it is an infection...also, thinking about other allergens as well > that can cause bed headaches.. worth seeing your doc if it continues...I would be curious if sprycel would do that after four years without that as a side effect for you.. good luck and keedp us posted. Beth > > -----Original Message----- > From: ICANDOALLTTC <[email protected]> > To: cmlhope <[email protected]> > Sent: Sun, Jun 10, 2012 7:25 am > Subject: [CMLHope] bad headaches from Sprycel and signs of brain bleed or PE ? > > > Hello all, > I was doing really well on Sprycel but recently developed a really bad headache that medicine won't cure. It feels like my sinus and hurt behind my eyes and etc. I was around a person with a really bad cold but she was coughing and etc so don't know if it is a bug. Anyone had this on Sprycel? > Thanks so much. I have been on Sprycel for about 4 yeas. > Jeanie<3 > > > In a message dated 6/7/2012 5:11:15 P.M. Eastern Daylight Time, [email protected] writes: > > Hi Kelly, > > Although I have never been on any TKI's I wouldn't know about any depression that they may cause. What I do know is what I always say. Leukemia is a disease of both the body and mind. When I had Leukemia I was very depressed, who wouldn't be? I had a bone marrow transplant more then 23 years ago and now I have kidney failure and am on dialysis. Am I depressed now? Absolutely not. I often ask myself why am I not depressed going through dialysis. They stick two large needles into my arm, and it hurts like hell, and I have to sit there for four hours but it doesn't depress me. > > As I said Leukemia is a disease of the body and mind. Maybe the TKI's are not necessarily your problem. The whole thing is to make your mind work in your favor. You just need to really try focusing on some of the good things in your life. > > I usually say that you are sitting on one side of a child's See-Saw. There you are with all of these problems on your shoulders weighing on you and bringing you down. Now let's say you start putting some of the good things in your life (if we look hard enough we can find some of these good things) Start putting these good things on the opposite side and what happens then? > > > Your side starts coming up and some of that burden is lifted right off of your shoulders... > > I wish you well, and I always end any of my posts with two numbers, 18 which symbolizes life. > > 18's to you Kelly > > Marty > > > On Thu, Jun 7, 2012 at 7:17 AM, Ricardo Gadelha <[email protected]> wrote: > > Dear Friends, > The only antidepressant that works with less side effects in my son was Wellbutrin. > It seems that for the ones who take gleevec this is the only antidepressant you should take. Talk to your doctor about that. > Bless you all. > > > On Wed, Apr 11, 2012 at 7:49 PM, kellyelise <[email protected]> wrote: > > Does anyone else suffer from severe cycles of depression related to > the TKI's? I have taken all 3 (Gleevec, Sprycel and Tasigna). > > During "vacations" from these drugs and prior to diagnosis, I had > never experienced such severe depressive episodes. > > I'm talking about a tornado touchdown with complete devastation to the > point of suicidal ideation. Can't stop crying, hide from the world and > just die. Bleh! > > They plop me on various antidepressants every time I start a new TKI, > which are totally ineffective and increases various side effects. I am > one of the oddballs that gets rare side effects and I react badly to > just about everything they give me. > > So, I'm probably the oddball who reacts psychologically to these > drugs, too. I can't explain it, control it or avoid it. > > Just curious - anyone else? > Kelly > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > > > > > -- > Ricardo > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
