Thanks so much Michele,
I may have to take a vacation from Sprycel soon myself.  I will talk  to my 
onc soon.  These headaches are no fun.
I have never had the saddness, but my brain is sometimes fuzzy.
Blessings,
Jeanie<3
 
 
In a message dated 6/15/2012 1:14:06 P.M. Eastern Daylight Time,  
[email protected] writes:

HI Jeanie,  


I also frequently get headaches from Sprycel; it is apparent that it is  
from sprycel because the few times that I have been taken off of it, the  
headaches disappear.They re-appear once I resume taking it. Here is a blog  
post 
that describes other things that I have noticed while taking  Sprycel;

_http://www.leukemiasurvivor.co/2011/06/sprycel-dasatinib-my-return-new-foun
d.html_ 
(http://www.leukemiasurvivor.co/2011/06/sprycel-dasatinib-my-return-new-found.html)
  


Hoping to day is a great one,
Michele



On Sun, Jun 10, 2012 at 6:25 AM, <[email protected]_ 
(mailto:[email protected]) > wrote:


Hello all,
I was doing really well on Sprycel but recently developed a really bad  
headache that medicine won't cure.  It feels like my sinus and hurt  behind my 
eyes and etc.  I was around a person with a really bad cold  but she was 
coughing and etc so don't know if it is a bug.  Anyone had  this on Sprycel?
Thanks so much.  I have been on Sprycel for about 4 yeas.
Jeanie<3
 
 
In a message dated 6/7/2012 5:11:15 P.M. Eastern Daylight Time, 
[email protected]_ (mailto:[email protected])  writes:

Hi Kelly,
 
Although I have never been on any TKI's I wouldn't know about any  
depression that they may cause. What I do know is what I always say.  Leukemia 
is a 
disease of both the body and mind. When I had Leukemia I was  very 
depressed, who wouldn't be? I had a bone marrow transplant more then  23 years 
ago 
and now I have kidney failure and am on dialysis. Am I  depressed now? 
Absolutely not. I often ask myself why am I not depressed  going through 
dialysis. 
They stick two large needles into my arm, and it  hurts like hell, and I 
have to sit there for four hours but it  doesn't depress me. 
 
As I said Leukemia is a disease of the body and mind. Maybe the TKI's  are 
not necessarily your problem. The whole thing is to make your mind  work in 
your favor. You just need to really try focusing on some of the  good things 
in your life.
 
I usually say that you are sitting on one side of a child's See-Saw.  There 
you are with all of these problems on your shoulders weighing on you  and 
bringing you down. Now let's say you start putting some of the good  things 
in your life (if we look hard enough we can find some of these good  things) 
Start putting these good things on the opposite side and what  happens then? 
 
 
Your side starts coming up and some of that burden is lifted right  off of 
your shoulders...
 
I wish you well, and I always end any of my posts with two numbers,  18 
which symbolizes life.
 
18's to you Kelly
 
Marty


On Thu, Jun 7, 2012 at 7:17 AM, Ricardo Gadelha  
<[email protected]_ (mailto:[email protected]) > wrote:

Dear Friends,
The only antidepressant that works  with less side effects in my son was 
Wellbutrin.
It seems that  for the ones who take gleevec this is the only 
antidepressant you should  take. Talk to your doctor about that.
Bless you all.

On Wed, Apr 11, 2012 at 7:49 PM, kellyelise <[email protected]_ 
(mailto:[email protected]) > wrote:

Does anyone else suffer from severe cycles of  depression related to
the TKI's? I have taken all 3 (Gleevec,  Sprycel and Tasigna).

During "vacations" from these drugs and  prior to diagnosis, I had
never experienced such severe depressive  episodes.

I'm talking about a tornado touchdown with complete  devastation to the
point of suicidal ideation. Can't stop crying,  hide from the world and
just die. Bleh!

They plop me on  various antidepressants every time I start a new TKI,
which are  totally ineffective and increases various side effects. I am
one of  the oddballs that gets rare side effects and I react badly to
just  about everything they give me.

So, I'm probably the oddball who  reacts psychologically to these
drugs, too. I can't explain it,  control it or avoid it.

Just curious - anyone  else?
Kelly

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