Hi SusieQ,
So glad you are undetectable; that is our goal that we shoot for.   Pain is 
such an issue and if you are like me, I never like to think of myself as  
having to live off pills.  Well, my life certainly has changed as pills are  
a way of life for me now.  Pain management is very important; living with  
pain is a constant strain on our stress levels.  
My sister, who has never taken a CML drug has arthritis really bad in her  
knees and back.  She is going for her 3rd knee implant soon.  She  walks 
with a cane but is doing really well.
Good luck to all,
Jeanie<3
 
 
In a message dated 6/24/2013 10:53:11 P.M. Eastern Daylight Time,  
[email protected] writes:



On Sunday, June 23, 2013 11:35:09 AM UTC-5, Suzieq wrote:  
Hello everyone:  


I don't know if I posted my results or not,  but they came back  "none 
detected" once again........it's been this way straight through since  the 
beginning of 2010......YIPPEE!!!   My doctor is letting me cut the  Gleevec 
back 
to 100mgs a day and we will see how that does.   I will  celebrate my tenth 
anniversary of my diagnosis next February 6th (according  to my mom as 
that's her birthday and she always reminds me that I called her  and told her 
on 
her birthday about the diagnosis.)    


I see the new Pain Management Specialist this coming Friday.  I do  hope he 
is able to help me.   I have had two awful bad nights in a row  now.  Was 
doing much better up till then.  Been seeing my  Chiropractor regular and 
he's been helping me quite a bit with my Sciatic  leg pain and hip pain.  But, 
then the arthritis in the SI joints  decided to act up and there isn't a 
whole lot he can do for that.  I've  been hitting my bottle of pain meds pretty 
regular for past two days.  I am beginning to think my husband may be right 
about me being in a  wheel chair soon.  But, I will do all I can to fight 
that and keep  going.  I don't mind walking with my cane if I need to,  but 
don't  want to give into the wheel chair before I turn 60 years old.  


Alright,  gotta get going now.  Y'all have a great day and  enjoy the 
summer.....


Suzieq

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