Sylvia, So sorry your numbers didn't hold longer than they did. After twelve years, you'd think they would. Everybody is different! Thank God for gleevec. Best wishes to you and thanks for updating us all. 18's,
Susan -----Original Message----- From: bkbarney <[email protected]> To: cmlhope <[email protected]> Sent: Fri, Aug 2, 2013 1:57 am Subject: Re: [CMLHope] Re: Back on Gleevec Dear Sylvia, I am sorry your break did not hold your numbers. I am however, grateful that you respond to gleevec and that " your old friend" is, with side effects and all, still a very powerful allie. You have a great attitude about it. Just so you don't feel alone, I went off sprycel for 7 weeks, and lost my MMR during that time. I was dissapointed, but relieved that when I went back on, the med worked quickly to get me back in line. Now it's just trying to navigate the side effects...Still trying to find a way to bring down my CPK....I am researching this as much as I am able...anyone who has any ideas about it, please let me know!!! Pat? Any suggestions?? Take care Sylvia, we are all here to chat with...so we are walking the path together. Warm thoughts and good care to all.Take good care, Beth -----Original Message----- From: Richard H <[email protected]> To: cmlhope <[email protected]> Sent: Thu, Aug 1, 2013 9:29 pm Subject: [CMLHope] Re: Back on Gleevec Sorry to hear that the vacation didn't work. Richard H. On Thursday, August 1, 2013 8:04:09 PM UTC-5, Sylvia wrote: Hi everyone I wrote about 2 months ago that after 12 yrs on Gleevec I was going to take a break and go off for a while. My dr wasn't too pleased and said i needed to come back in a month for a PCR. Well my results went from a 4.5 log reduction to a 2.8 log reduction. That's a lot in 1 month. So I am back on Gleevec. It's like welcoming back an old friend. I am thankful for Gleevec as many of my CML friends didn't live long enough to try it. Blessings to all Sylvia Guenther Dx 6/98 -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
