Marty, Thanks for your words of encouragement to all of us...I needed them today. The fighter in me can sometimes get tired...holding perspective of how much better I am than many is useful. I know it doesn't negate what Peter said, it feels bad when we go off and it comes right back....roaring in a very short time span...but as you say, it's individual...it's just our lot...so I am counting my blessings...I know it could be lots worse....just not feeling great today...hopefully in a few hours I will feel better.....going to take a walk.....lving in gratitude for my two feet and ability to walk!!! Thanks. B
-----Original Message----- From: Marty Gartenberg <[email protected]> To: cmlhope <[email protected]> Sent: Fri, Aug 2, 2013 10:24 am Subject: Re: [CMLHope] Re: Back on Gleevec Hi Peter, Don'r become discouraged. We all have different bodies and what may work for one may not work for another. Everyone acts differently from different drugs. Who knows why but the fact is you you are still alive and basically doing well. I just wish any of these TKI's would have been around when I had CML. This was way back in 1989 and I had nothing available to me but a bone marrow transplant. Peter, you know that old saying "I was sad because I had no shoes until I met a man with no feet" Anyway, it is in my heart that there will be something that will come up to cure or prevent CML in the near future. It will be like the Salk Vaccine that prevents Polio. 18's (Symbol for life) Marty On Fri, Aug 2, 2013 at 7:50 AM, Peter <[email protected]> wrote: Those vacations can backfire. A few months ago, I was in really bad shape, undoubtedly caused by Tasigna. I did not take Tasigna for ten days and then resumed the regular dose. The next blood test, about two months later, showed that my log reduction had decreased from 3.4 to 2.5. Ouch!!! The two tests three and six months after that, showed a 3.0 log reduction, which is where I am now. Needless to say, I have been taking my meds religiously ever since. There must be some secret which has not been unlocked yet. Why can some people get away with not taking any TKIs for years, while others are instantly punished after skipping a few doses? On Thursday, August 1, 2013 9:04:09 PM UTC-4, Sylvia wrote: Hi everyone I wrote about 2 months ago that after 12 yrs on Gleevec I was going to take a break and go off for a while. My dr wasn't too pleased and said i needed to come back in a month for a PCR. Well my results went from a 4.5 log reduction to a 2.8 log reduction. That's a lot in 1 month. So I am back on Gleevec. It's like welcoming back an old friend. I am thankful for Gleevec as many of my CML friends didn't live long enough to try it. Blessings to all Sylvia Guenther Dx 6/98 -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
