Thanks MIllie.... I'm a trouper... I appreciate your kindness and writing. Today was the 2nd anniversary of my mom's death and I think the whole week was hard as my body and heart remember companioning her...I miss her so... My cpk is up higher than it's ever been and so I am trying to get to the bottom of why? and what action to take....like so manyof us, it's a slow process to uncover what's really going on, but I feel confident that some way, some how, I can and will get through this pain by staying positive, hopeful and taking action where I can....giving to others, in meaningful ways, brings meaning to my life. I thank you and Marty and Skip and other long term thrivers here who take the time to share. It's more important than I have words for. It just is., You keep taking good care of yoruself, stay positive, enjoy the little things that make you smile ..like a really good deal on thread, or the taste of summer fresh corn on the cobb....shared with those you love......simple.... Love, Beth
From: C.M. Houtz <[email protected]> To: cmlhope <[email protected]> Sent: Fri, Aug 2, 2013 1:57 pm Subject: Re: [CMLHope] Re: Back on Gleevec Hi Beth, Sorry that you're having a bad day. Hope that the walk will help. I sure wish I could get out and walk, so feel lucky that you can do that. I was just working on supper. I am having burgers, corn, cut off the cob and sautéed in butter, and a tomato and cucumber salad that I love. It's what it is, and I love to get it done early. Actually, I got on here because JoAnn Fabrics was having a sale on some thread that I use and shipping was next to nothing, so I'm happy that I got such a good deal. That always makes me smile.... We all have tough days. I'm sure that I'll have many in the future, and hope that you all will be there for me. I'm there for anyone that needs to vent, or just talk. We have issues with taking these meds, yet they are our salvation too. It's a rough call sometimes. I'm in pain today, so am taking my meds for that and hoping to control it...which I am so far. It isn't a CML thing, but my Polymyalgia and some days are worse then others. Lately, it seems like it's more of the worse. It will go away for days, but always manages to come back. I also had a call from the place where I send for my prescriptions and they can't get my one medication and don't know when they'll be able to, so want the doctor to prescribe something else and that means possibly having a different reaction to a new medication. I've decided to put off calling my Cardiologist until Monday as I just don't feel like dealing with it today. I guess that sounds stupid, but it is what it is. It's one of my heart medications and I have over a months supply left, so no big deal..... You take care, my friend, and let me know if there's anything I can do to help you. I wish I could come up with the answers that we're all searching for and, Marty is right, Someday they'll find the answer to this awful CML and other cancers and people won't have to deal with it any more. I'm sure that something else will crop up to take it's place though. We are lucky to be living in a time when they look for solutions. Many hugs (I believe they help) and lots of 18's too. Millie -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
