I'm so glad that our Marty is able to get on here and help us all. I know that he's battling his own issues and that it's difficult for him, but he's still helping and I know that is what he's meant to do. He has helped me through so many health issues and is still helping me. I am strong, but have days when I don't feel that strong, but then I read what Marty has said to me, and it does put me back to where I should be. Everyone should have a Marty in their lives.
Just know that this group is always ready to help anyone that needs the help and most of the advice is the best. Of course, we all have to decide what's in our best interest and I always check things out with my Oncologist of 20 years. He is another person in my life that I trust and believe in. Right now, I'm on home care and had my nurse come in at 8:00 A.M. and check me over. I'm doing pretty well today. I just have to learn more about the challenges I'm facing and deal with them. Like I've said many times I take one day at a time and do the best I can. Everyone should do that. It's hard not to think about what might happen, but I know that worrying about it isn't going to help either, so you put one foot in front of the other and keep on going. Giving up has never been an option for me. Marty is correct when he tells us that our mind can help us control this disease. I have learned that I can deal with my pain that way and it works most of the time. Take care, and just remember that we're all here to help, whether just listen, pray for, or give advice. Many hugs, Millie ----- Original Message ----- From: Marty Gartenberg To: [email protected] Sent: Thursday, March 13, 2014 9:00 AM Subject: Re: [CMLHope] Aniversery 13 Hi Dawn, You are a shining example of what 18's means. You are also an example for everyone to see that no matter how it effects them they are still alive because of something that was not around when I had CML. I had no other viable choice but to have gone through a bone marrow transplant almost 24 years ago. Everyone that is reading this is a survivor and should keep that in mind. I would like to bring someone up. His name is Skip, and he has had CML for over 36 years, I believe now going on 37 years, and is currently not on any TKI's but is still alive. I know him personally and I know that his mind is what is controlling his body. This man has such a great attitude that we should all take an example from him, I know that I do. I truly love each and every one of you because you are fighters which few can understand because they don't know what we all go through and still keep on "ticking". I am proud to call you my extended family. Just one more thing to say: When I read about someone being PCRU I am over joyed because of all the advances that have been maid because of all the ways CML is now being treated. Mark my words, before to long CML will be a disease that will be no more, just like Polio was once. A simple vaccine took care of that and so it will be for CML. For those that are not PCRU, then so what, because it is only a bunch of numbers and you are all still alive. Before my bone marrow transplant I was given only a fifteen percent chance of survival. I went into this but said to myself, "hey, this is only a number" and I am still here and alive. It is like the doctor telling his patient you have only six months to live, and the doctor died shortly after. Remember what I have said many times. It is your mind that can help to control your body. Try and live by that and you will be a much happier person. I am not here to preach to any of you but simply trying to help in any way that I can. As I previously mentioned, your all part of my extended family. As most of you know, I have been going through some difficult times and I have been getting so many prayers and good wishes that I just want to return it to all of you. My mind is truly helping me through every day that I live. Now you know why I end each and every post with those two numbers 18's (the symbol for life) to all of you. Marty 18's to each and every one of you. Marty On Wed, Mar 12, 2014 at 11:02 PM, DAWN RODEGHIER <[email protected]> wrote: 17 for me, been on Gleevec since it was approved in the US, I also go Monday to my Onc. I still get the cramps in different parts of the body but that's better than the alternative. From: Richard H <[email protected]> To: [email protected] Sent: Tuesday, March 11, 2014 11:13 PM Subject: [CMLHope] Aniversery 13 I have passed my 13th year with CML. Monday I will meet with my ONC for the results on my blood tests. My CBC was eactly where it should be so I am praying for good results. About a month ago I noticed a spring in my steps to coffee club and increased energy. I will report the findings after I get them. I am praying for all, and so glad Marty is feeling better and able to join on line. Richard H. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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