Hi Susan, You are always in my prayers and I pray that this new medication will do it for you. Please let us know how it's going. I'm lucky that so far Tasigna is working for me and I'm only on 1/2 dose of it. They put me on the lower dose because of my liver disease and so far so good. I will continue to pray for you and please keep us up on what's happening, okay?
Talk to you soon, Love, & Hugs, Millie ----- Original Message ----- From: 'Susan Zimmerman' via CMLHope <[email protected]> To: [email protected] Sent: Wed, 07 May 2014 21:50:48 -0400 (EDT) Subject: Re: [CMLHope] No Updates? Hey everyone, I started on bosutinib yesterday at 100 mg. Please keep me in your prayers that this medicine will work and I can stay on it without any stroke symptoms, like has happened with all the rest of the drugs. I am going to Chicago (Northwestern) at least once a month now, next again for a two-week follow-up. It's a one hour and forty minute drive with no slow-downs. I make it a fun day. Last Wednesday my husband made it a business trip and took me along, dropped me off and met again later. It's easier on my nerves when driving downtown! Dr. Altman wants to check my reaction to the lowest dose in two weeks. I'm sure it will be fine...... They also did an EKG on me and it showed that I do have prolongation between heartbeats, just a tad above normal. This could be why I'm so devastatingly tired all the time! I do not want to develop anything worse from the prolongation, so they will give me an EKG each time I go for awhile. Got to do some homework on this. Sure have loved and enjoyed being off all medication for 7 whole years. Dr. Altman says I'm really "special" to have lasted this long. Don't know by that if she means "crazy" or idiotic, or what....it is what it is! Marty, I am standing with everyone to pray you will receive a new kidney soon...and Millie, keep pressing the docs about why all these pains are gripping you and what can they do about it. We have to be pro-active, although I know just getting through the day sometimes is all the "pro-active" we can be!!! Beth, praying for you, too! 18's and hang in there, Susan Zimmerman -----Original Message----- From: C.M. Houtz <[email protected]> To: cmlhope <[email protected]> Sent: Tue, May 6, 2014 11:54 pm Subject: Re: [CMLHope] No Updates? Hi Richard, I've been thinking the same thing. I hope that it means all if okay. I have been having a lot of Arthritis problems and can hardly move my arms. It hurts to type a lot. from the elbow down I'm fine, but from the elbow up it's so painful to lift my arms or do anything that requires reaching, lifting, etc. What a mess I am.. I try to cope with it, and do some exercises that help, but if it hurts to do them, they tell me not to force it.. Say prayers for Marty, and Beth as I know they're having their own set of problems. If you have any left over, pray that my arms will start working well enough for me to accomplish something. Marty has a weeks worth of tests, doctors, etc. to deal with, and Debbie has her back issues. I know that this is a CML site, but it seems like other things get in the way that we deal with. I do hope all is well with you. I'll keep watching for e-mails from the group, and hope that they will all be good news. Jeanie got kicked off of the Goggle site, and I can't remember why. She was trying to change things and it took her down. I don't think she knows how to get back on. I still e-mail her and we talk that way, but she was a huge asset to our group. I forward her messages to you guys, but she needs to get hooked up directly. I sure don't want to loose touch with anyone. Talk to you soon. Love, Hope, and Prayers, Millie ----- Original Message ----- From: Richard H To: [email protected] Sent: Tuesday, May 06, 2014 11:40 PM Subject: [CMLHope] No Updates? I haven't seen any new or responses for almost a week. I hope everyone is okay and just busy with life. Richard H. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
