Dear Maria, Yes, please keep us posted....many people here, most don't write consistently, but they do keep you and everyone else in their prayers...Glad you are here with us..Hope you feel better soon. and the platelets normalize and your re-uptake of the sprycel goes well.
Warm regards to you and love to everyone. Beth -----Original Message----- From: margood18 via CMLHope <[email protected]> To: cmlhope <[email protected]> Sent: Wed, Sep 3, 2014 9:16 am Subject: Re: [CMLHope] Digest for [email protected] - 3 updates in 1 topic Maria, sorry to hear about the insurance problems and infection. Prayers that all will go well and your platelets will normalize. Please let us know how you do. Marcie -----Original Message----- From: Maria Cashion <[email protected]> To: cmlhope <[email protected]> Sent: Tue, Sep 2, 2014 10:24 pm Subject: Re: [CMLHope] Digest for [email protected] - 3 updates in 1 topic Hello everyone!!!! God bless you all!!! I have been out of touch for a while. My situation is still complicated, but rather uneventfull. I went to my appointment and my oncologist for the day told me that I might need another bone marrow aspiration and biopsy soon. She was worried because my platelets went down. The problem is that I have not been able to take my sprycel steadily. I have skipped some days. Sprycel acts really strongly on my platelet count, and I know this is what is happenning. Apparently, I have an infection also running around my system. To make it more interesting, I have been out of medication for a whole week due to insurance red tape... I will resume my Sprycel 70 mcg dose daily tomorrow after I do another CBC. I have an appointment in two weeks... Well, please take care!!!! Love you!!!! Blessings!!! :) Maria On Tue, Sep 2, 2014 at 6:17 AM, <[email protected]> wrote: [email protected] Google Groups Topic digest View all topics painful jaw? - 3 Updates painful jaw? [email protected]: Sep 01 10:38AM -0400 Hi Marty and thanks, yes I am going to get an antibiotic for it. I have been treating it with heat and etc. but no luck. It is something new that I have never had before, so it is a worry. I have had strep throat a lot of my young adult life, but not in later years, and it had to be treated with antibiotics. How are you? I am good except for this new pain. Looking forward to the fall. Blessings, Jeanie<3 In a message dated 8/31/2014 11:31:20 A.M. Eastern Daylight Time, [email protected] writes: Hi Jeanie, Having ear infections is not uncommon. However please don't do nothing about it because you don't want it to spread if it is an infection. Go get it treated by your doctor usually an antibiotic is all that you will need and once on it you would start feeling much better in a couple of days. Also, having CML and being on any TKI you should look to avoid the sun. I hope that you will feel better real soon. 18's, Marty On Sun, Aug 31, 2014 at 11:06 AM, ICANDOALLTTC via CMLHope <[email protected]_ (mailto:[email protected]) > wrote: Hello to all my cml warriors, I have been sick; my jaw is sore and it feels like my ear is infected. I have been home treating it with hot compresses and etc. Has anyone else had this happen? It is very painful. Yes, I always get really hot if I don't keep my air going. I always spent time in the sun, but now this time is very limited. I had really bad night sweats when I was first dx. I would run a fever, take a tylenol and sweat it off. Then it would come back again. With Sprycel, I don't sweat unless I get really hot. I always thought sweat was another way for the body to expel waste products, so it isn't a bad thing. Sorry to hear some can't take the Sprycel, as it has done wonders for me. We are all different so we have to listen to our bodies and decide along with our doctors advice. Still worried about the high platelets, but don't get tested until the end of Sept. Thanks for the prayers and all; we need them. Pray for all in need at this time. Blessings, Jeanie<3 In a message dated 8/25/2014 5:05:53 P.M. Eastern Daylight Time, [email protected]_ (mailto:[email protected]) writes: On Monday, August 25, 2014 4:04 PM, NICK WOODS <[email protected]_ (mailto:[email protected]) > wrote: Thanks, Peter. We think it's part of the body reaction to the medicine, too. You're so right! You do run out of steam when that happens. Elizabeth W. On Monday, August 25, 2014 3:48 PM, Peter <[email protected]_ (mailto:[email protected]) > wrote: Hi Elizabeth. I am on Tasigna. Whenever I do anything involving physical activity, like mowing the lawn, I am usually ok for the first 10 or 20 minutes. Then almost instantly, I start sweating profusely, especially in the face and around the neck and it isn't long after that, when I start running out of steam. It was like that too when I was taking Gleevec. So, I figure that this is part of the deal. Peter On Monday, August 25, 2014 3:53:00 PM UTC-4, Nick wrote: We've had some hopeful news. Nick's hemoglobin is moving up a little. His Oncologists decided to lower the amount of Gleevec per week. Nick's feeling so much better, too. Sure hope the hemoglobin will continue to move back to a normal level. We are thankful to have a very thoughtful Oncologist who keeps up with all the latest medical information on CML. Thank you all for sharing your updates and information on how different CML treatments affect you. Nick sweats a lot. He has to keep hydrated especially with this high heat. Do any of you sweat perfusely? On Sunday, August 24, 2014 5:26 AM, "[email protected]" <[email protected]> wrote: [email protected]_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics) _Google Groups_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview) (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overvi ew) Topic digest _View all topics_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics) * _Greenie and Susan_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc&.rand=bbnesbc5bs20a#group_thread_0) - 4 Updates _Greenie and Susan _ (http://groups.google.com/group/cmlhope/t/358154c7de47d903?utm_source=digest&utm_medium=email) Marty Gartenberg <[email protected]>: Aug 23 08:41AM -0400 Hi Susan, Praying for you. I know that GOD listens to my prayers. Things will get better for you, don't you worry about that. When I say 18's you know it means life and that is what your going to have. A good life! So, I double my 18's for you to 36. Two times Chai. Marty On Fri, Aug 22, 2014 at 10:37 PM, 'Susan Zimmerman' via CMLHope "Nadia Noles" <[email protected]>: Aug 23 07:20PM -0400 Thank you Marty, I do good, if after 7 yahre on Gleevec. I love to read from cmlhope, but don't post. Today you deserve a big Merci. Nadia -----Original Message----- From: [email protected] [mailto:cml...@googlegroups. com] On Behalf Of Marty Gartenberg Sent: Friday, August 22, 2014 7:27 PM To: [email protected] Subject: [CMLHope] What happened to everyone? I hope that everyone is doing well.. 18's, Marty -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------ ------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to CMLHope-u...@ googlegroups.com For more options, visit this group at _http://groups.google.com/ group/CMLHope_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@ googlegroups.com. For more options, visit _https://groups.google.com/d/ optout_ (https://groups.google.com/d/optout) . Marty Gartenberg <[email protected]>: Aug 23 10:26PM -0400 Thank you Nadia, It was nice hearing from you. Why don't you post more often? You are always welcome here. Please stay in touch. 18's, Marty Susan Zimmerman <[email protected]>: Aug 24 12:10AM -0400 Marty, You are precious and I feel your prayers! I think He's about to give me another rest from medicine, (already!) because of the elevated liver enzymes. I have decided that is a good thing! I'm sure my numbers are even lower than 1.70 (last month), so it's all good. I'm looking forward to getting more energy back. How are things going for you nowadays? No posting about your own issues, come on and share. I know you need a transplant and I and many others are praying hard for that to happen soon! So sweet to give me a 36, I give you a 54!!!! Susan F. Zimmerman -----Original Message----- From: Marty Gartenberg <[email protected]> To: cmlhope <[email protected]> Sent: Sat, Aug 23, 2014 8:41 am Subject: Re: [CMLHope] Greenie and Susan Hi Susan, Praying for you. I know that GOD listens to my prayers. Things will get better for you, don't you worry about that. When I say 18's you know it means life and that is what your going to have. A good life! So, I double my 18's for you to 36. Two times Chai. Marty On Fri, Aug 22, 2014 at 10:37 PM, 'Susan Zimmerman' via CMLHope > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+u...@ googlegroups.com. > For more options, visit _https://groups.google.com/d/ optout_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------ ------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to CMLHope-u...@ googlegroups.com For more options, visit this group at _http://groups.google.com/ group/CMLHope_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@ googlegroups.com. For more options, visit _https://groups.google.com/d/ optout_ (https://groups.google.com/d/optout) . _Back to top_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc&.rand=bbnesbc5bs20a#digest_top) You received this digest because you're subscribed to updates for this group. You can change your settings on the _group membership page_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/joi n) . To unsubscribe from this group and stop receiving emails from it send an email to cmlhope+u...@ googlegroups.com . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . For more options, visit https://groups.google.com/d/optout. [email protected]: Sep 01 10:43AM -0400 Hi Marty and yes it was a feast. He makes his own barbecue sauce with green peppers and onion. Yummy to the tummy! I used to know all the movie stars names, but now I have to crank up the computer of a mind I have and sometimes the name just wont come. I have always loved movies and especially mysteries. Betty Grable and Roy Rodgers were two of my favorite. A lot of the youngsters might not know them hehe. I have loved music also and taught myself how to play the piano when I was young. I sang in the glee club in school and loved it! I have a small electric organ that I play now; not as much as I should. Pray for all, Blessings and Love Jeanie<3 In a message dated 8/31/2014 11:36:25 A.M. Eastern Daylight Time, [email protected] writes: Hi again Jeanie, Hey your not the only one that forgets, so do I. If your above the age of 65 it's a disease called CRS. (Can't Remember S**T) Please pardon the "French" I hope that you and your son enjoy that fish you will be having for lunch. With all of those trimmings it does sound like a feast. 18's, Marty On Sun, Aug 31, 2014 at 11:08 AM, ICANDOALLTTC via CMLHope <[email protected]_ (mailto:[email protected]) > wrote: Forgot, my son caught a big red fish and he is cooking it for my lunch today! Can't wait. He makes grits and tomato gravy with a delicious tartar sauce. He is also making hush puppies, so it will be a feast. Blessings, Jeanie<3 In a message dated 8/31/2014 11:06:11 A.M. Eastern Daylight Time, [email protected]_ (mailto:[email protected]) writes: Hello to all my cml warriors, I have been sick; my jaw is sore and it feels like my ear is infected. I have been home treating it with hot compresses and etc. Has anyone else had this happen? It is very painful. Yes, I always get really hot if I don't keep my air going. I always spent time in the sun, but now this time is very limited. I had really bad night sweats when I was first dx. I would run a fever, take a tylenol and sweat it off. Then it would come back again. With Sprycel, I don't sweat unless I get really hot. I always thought sweat was another way for the body to expel waste products, so it isn't a bad thing. Sorry to hear some can't take the Sprycel, as it has done wonders for me. We are all different so we have to listen to our bodies and decide along with our doctors advice. Still worried about the high platelets, but don't get tested until the end of Sept. Thanks for the prayers and all; we need them. Pray for all in need at this time. Blessings, Jeanie<3 In a message dated 8/25/2014 5:05:53 P.M. Eastern Daylight Time, [email protected]_ (mailto:[email protected]) writes: On Monday, August 25, 2014 4:04 PM, NICK WOODS <[email protected]_ (mailto:[email protected]) > wrote: Thanks, Peter. We think it's part of the body reaction to the medicine, too. You're so right! You do run out of steam when that happens. Elizabeth W. On Monday, August 25, 2014 3:48 PM, Peter <[email protected]_ (mailto:[email protected]) > wrote: Hi Elizabeth. I am on Tasigna. Whenever I do anything involving physical activity, like mowing the lawn, I am usually ok for the first 10 or 20 minutes. Then almost instantly, I start sweating profusely, especially in the face and around the neck and it isn't long after that, when I start running out of steam. It was like that too when I was taking Gleevec. So, I figure that this is part of the deal. Peter On Monday, August 25, 2014 3:53:00 PM UTC-4, Nick wrote: We've had some hopeful news. Nick's hemoglobin is moving up a little. His Oncologists decided to lower the amount of Gleevec per week. Nick's feeling so much better, too. Sure hope the hemoglobin will continue to move back to a normal level. We are thankful to have a very thoughtful Oncologist who keeps up with all the latest medical information on CML. Thank you all for sharing your updates and information on how different CML treatments affect you. Nick sweats a lot. He has to keep hydrated especially with this high heat. Do any of you sweat perfusely? On Sunday, August 24, 2014 5:26 AM, "[email protected]" <[email protected]> wrote: [email protected]_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics) _Google Groups_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview) (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overvi ew) Topic digest _View all topics_ (https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics) * _Greenie and Susan_ (https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc&.rand=bbnesbc5bs20a#group_thread_0) - 4 Updates _Greenie and Susan _ (http://groups.google.com/group/cmlhope/t/358154c7de47d903?utm_source=digest&utm_medium=email) Marty Gartenberg <[email protected]>: Aug 23 08:41AM -0400 Hi Susan, Praying for you. I know that GOD listens to my prayers. Things will get better for you, don't you worry about that. When I say 18's you know it means life and that is what your going to have. A good life! So, I double my 18's for you to 36. Two times Chai. Marty On Fri, Aug 22, 2014 at 10:37 PM, 'Susan Zimmerman' via CMLHope "Nadia Noles" <[email protected]>: Aug 23 07:20PM -0400 Thank you Marty, I do good, if after 7 yahre on Gleevec. I love to read from cmlhope, but don't post. Today you deserve a big Merci. Nadia -----Original Message----- From: [email protected] [mailto:cml...@googlegroups. com] On Behalf Of Marty Gartenberg Sent: Friday, August 22, 2014 7:27 PM To: [email protected] Subject: [CMLHope] What happened to everyone? I hope that everyone is doing well.. 18's, Marty -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------ ------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to CMLHope-u...@ googlegroups.com For more options, visit this group at _http://groups.google.com/ group/CMLHope_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@ googlegroups.com. For more options, visit _https://groups.google.com/d/ optout_ (https://groups.google.com/d/optout) . Marty Gartenberg <[email protected]>: Aug 23 10:26PM -0400 Thank you Nadia, It was nice hearing from you. Why don't you post more often? You are always welcome here. Please stay in touch. 18's, Marty Susan Zimmerman <[email protected]>: Aug 24 12:10AM -0400 Marty, You are precious and I feel your prayers! I think He's about to give me another rest from medicine, (already!) because of the elevated liver enzymes. I have decided that is a good thing! I'm sure my numbers are even lower than 1.70 (last month), so it's all good. I'm looking forward to getting more energy back. How are things going for you nowadays? No posting about your own issues, come on and share. I know you need a transplant and I and many others are praying hard for that to happen soon! So sweet to give me a 36, I give you a 54!!!! Susan F. Zimmerman -----Original Message----- From: Marty Gartenberg <[email protected]> To: cmlhope <[email protected]> Sent: Sat, Aug 23, 2014 8:41 am Subject: Re: [CMLHope] Greenie and Susan Hi Susan, Praying for you. I know that GOD listens to my prayers. Things will get better for you, don't you worry about that. When I say 18's you know it means life and that is what your going to have. A good life! So, I double my 18's for you to 36. Two times Chai. Marty On Fri, Aug 22, 2014 at 10:37 PM, 'Susan Zimmerman' via CMLHope > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+u...@ googlegroups.com. > For more options, visit _https://groups.google.com/d/ optout_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------ ------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to CMLHope-u...@ googlegroups.com For more options, visit this group at _http://groups.google.com/ group/CMLHope_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@ googlegroups.com. 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To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . For more options, visit https://groups.google.com/d/optout. Marty Gartenberg <[email protected]>: Sep 01 09:32PM -0400 Hi Jeanie, As I previously said ear infections are very common and easily treated with an antibiotic, usually Amoxacyln which I'm sure you already know about because of your bouts with strep throat. 18's, Marty On Mon, Sep 1, 2014 at 10:38 AM, ICANDOALLTTC via CMLHope < Back to top You received this digest because you're subscribed to updates for this group. You can change your settings on the group membership page. 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