Dear Richard, So sorry they turned you down on bosulif, but that may change down the road. If you begin to let all the side effects of gleevec always be known to this VA doc through your onc, eventually he might approve changing. They have to be convinced that those side effects are too much for you to bear.
Of course I've been watching your progress all these months about being off all meds, due to my own interest and background. You never have said what your bcr/abl international numbers have been. I would be interested? Many blessings, 18's, and Merry Christmas, Susan -----Original Message----- From: Richard H <[email protected]> To: cmlhope <[email protected]> Sent: Fri, Dec 12, 2014 12:40 am Subject: [CMLHope] I'm back on Gleevec. I am officially back on 400mg of Gleevec. My ONC and I had been discussing and researching the newer TKI's since July. The last month, I have been trying to get approved for Bosutinib approved thru the VA. My ONC and I thought the VA ONC had it on order, but when I went for my appointment The VA pharmacist had disapproved it. He would approve Gleevec. His reasoning was t hat I had had a good response for 4+ years. My 6+ years off TKI's should allow me another long success period. For those know or use the VA, my status is classified as a duel patient. I am only eligible for prescriptions, but the Cancer Meds have to be prescribed by a VA doctor. Of course, I am disappointed but the reality is that when I started the vacation My ONC and I had discussed the probably of doing this. But since they have 3 new TKI's and one of those looked like it would have less side effects we opted to change course. Richard H. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
