Sorry to hear that, Richard. 
Like Susan said, make sure your ONC is fully informed about your side 
effects and make lots of noise. The squeaky wheel always gets the grease! 
I am surprised that this kind of thing happens in the US. It's almost like 
here in Canada, where faceless, nameless bureaucrats often get to second 
guess doctors.

But..... think positive. Maybe in a few months you can get them to change 
their mind.

Peter


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