Hi Richard and so sorry you couldn't get approved. We warriors have double trouble. First we have to worry if our meds are working: then we have to worry if our insurance will cover our meds. I had to transfer from gleevec to tasigna and was on pins and needles til I got it approved. Then a few months later I had to go on a Sprycel. I got approved but the worry causes a lot stress. I pray you do good on Gleevec. Blessings 🎅Jeanie
Sent from my iPhone > On Dec 12, 2014, at 11:40 AM, "'Susan Zimmerman' via CMLHope" > <[email protected]> wrote: > > Dear Richard, > So sorry they turned you down on bosulif, but that may change down the road. > If you begin to let all the side effects of gleevec always be known to this > VA doc through your onc, eventually he might approve changing. They have to > be convinced that those side effects are too much for you to bear. > > Of course I've been watching your progress all these months about being off > all meds, due to my own interest and background. You never have said what > your bcr/abl international numbers have been. I would be interested? > > Many blessings, 18's, and Merry Christmas, > Susan > > > > -----Original Message----- > From: Richard H <[email protected]> > To: cmlhope <[email protected]> > Sent: Fri, Dec 12, 2014 12:40 am > Subject: [CMLHope] I'm back on Gleevec. > > I am officially back on 400mg of Gleevec. My ONC and I had been discussing > and researching the newer TKI's since July. The last month, I have been > trying to get approved for Bosutinib approved thru the VA. My ONC and I > thought the VA ONC had it on order, but when I went for my appointment The VA > pharmacist had disapproved it. He would approve Gleevec. His reasoning was > t hat I had had a good response for 4+ years. My 6+ years off TKI's should > allow me another long success period. For those know or use the VA, my > status is classified as a duel patient. I am only eligible for > prescriptions, but the Cancer Meds have to be prescribed by a VA doctor. Of > course, I am disappointed but the reality is that when I started the vacation > My ONC and I had discussed the probably of doing this. But since they have 3 > new TKI's and one of those looked like it would have less side effects we > opted to change course. > > Richard H. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
