Hi Sherry., One thing for sure in the middle of US is "The weather will change). Today was a balmy 36 degrees and a wind chill that was in the mid 20's. The sun was shining brightly so I walked to the community mail station. The worst part of living in this part of the US is that when we have the Artic Blast is a temperature drop of 40-50 degree drop and there is no way to prepare for it.
Richard H. On Saturday, January 10, 2015 at 3:31:32 AM UTC-6, Mosey wrote: > Hi Richard, > > If it's one thing I got, It's Attitude! At least that's what my mom would > tell me when I was a teenager. LOL > > Sorry to hear about the car. This cold weather can be brutal on a car's > battery. Glad you were able to get a new and now you’re good to go. > > Uor wind chills have been bad too. And we have some open fields so there > is nothing to block that wind. The other morning it was so cold that the > water froze in our community and none of had any water for awhile. It's a > good thing I'm an early raiser and I took my shower while we had water. > > Currently, it is -7 with a wind chill of -25 where I live and it isn't > going to be above zero until 9 am. That's cold. > > Stay warm Richard and think spring! > > L'chaim, > > Sherri > > On Fri, Jan 9, 2015 at 11:29 PM, Marty Gartenberg <[email protected] > <javascript:>> wrote: > > Hi Jeanie, > > So many things effect your kidneys. The simple ageing factor is just one > of them. Some medicines will also contribute to kidney function probably > some of these TKI's. Mine finally gave out from all of the chemotherapy and > radiation I had more then 25 years ago. > > I can make a suggestion: If you are not diabetic try drinking cranberry > juice. Not the ones that are mixed up with juices like grape juice. Ocean > Spray has pure cranberry juice so you might want to try it. Even if you are > diabetic they also make a light cranberry juice. > > You know what? You have been through so much that this is only a bump in > the road for you, and so it is for me. > > We have two choices. One, continue to fight and the other is not an option > for me or you. > That is why I always end any of my posts with 18's. You just hang in there > sweetie. > > Marty > > On Fri, Jan 9, 2015 at 7:55 AM, ICANDOALLTTC via CMLHope < > [email protected] <javascript:>> wrote: > > Hi Sherri, > I think the tki's contribute to kidney disease. I think that I am in the > beginning of the disease and I have been on tki's for 11 years now. > Hang in in there; blessings > Jeanie<3 > > In a message dated 1/9/2015 3:21:09 A.M. Eastern Standard Time, > [email protected] <javascript:> writes: > > Hi Marty, > > Thanks for the prayers and right back at ya. > > I've been struggling with my kidney disease for many years and didn't know > it, and then one day voilà the doctors found that there was a problem and > that I'd been fighting it for years hence the diagnoses of Chronic Kidney > Disease. And the funny thing is, I'm the only one in my entire family that > has any of these diseases. My family had its share of health issues from > heart disease to diabetes. But never anything like what I have. All my > doctors just shake their heads. I tell them that I like to keep things > interesting. And what they like is that I have a sense of humor. And at > this point, it is much better to joke and laugh than to worry and cry. > While I still take what I have seriously, I'm just happy to be here. > > I would be a lot happier if the weather here would warm up. For crying out > loud it was -5 here yesterday and I was out in it. Now that is one hearty > person or a very foolish one. The jury is still out on that one. Today it > is going to be a balmy 8. Woohoo! A heat wave. And, again I'll be out in > it as I have to go and get a Rx that I need. > > L'chaim, > > Sherri > > On Thu, Jan 8, 2015 at 10:40 PM, Marty Gartenberg <[email protected] > <javascript:>> wrote: > > Dear Sherri, > > Yes, you are a fighter and it takes one to know one. I pray that > everything turns out well for you. > > And you are correct that all of the radiation and chemotherapy did destroy > both of my kidneys. It has been over 25 years that I had my BMT. It took > many years for my kidneys to fail and that is probably why most transplant > centers will usually not use total body radiation any more unless it is > really needed. > > 18's, > > Marty > > On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson <[email protected] > <javascript:>> wrote: > > Hi Marty, > > The doctors are trying to treat the different illnesses that are included > in my condition. There are so many and they do so many different things, > that I am happy just to to be here. I agree that as we get older there are > some unusual things that that find us. But in the long run, we all got > something. I'm a survivor. It's what I do. So when I found out on Monday > that I have a large mass on my thyroid, I told my doctor I guess we're > going to be busy this winter. At least I'm not an alarmist. > > I too have trouble with my kidneys. Not to the extend that you do, I'm > working to keep myself at the current level of stage III Kidney Disease. > Some days, I'm good others, not so much. Lately I've not been doing so > good and I've had to go and buy new shoes as my feet have been so swollen > that my current size no longer fit. I wear compression socks all the time > as well. > > My Nephrologist ran some blood work and found that my sodium was very low > and and so was a bunch of other levels. Now, he is an alarmist. If I even > look like I'm getting a cold he freaks out. I love him dearly, and I do > what he says, but I can't sneeze without him making me go see my GP or the > Oncologist or whatever doctor he thinks I need to see. > > I've heard that when you have a BMT and have to have radiation and chemo, > sometimes kidney failure is possible. How long have you been on the list > for transplant? > > Well, I'm glad that you are here and that you are strong. You're an > inspiration to all of us. Thanks for all you do Marty. > > L'chaim > > Sherri > > On Thu, Jan 8, 2015 at 10:07 AM, Marty Gartenberg <[email protected] > <javascript:>> wrote: > > Hi again Sherri, > > Hopefully you will be able to be treated for this condition. It seems that > as most of us get older we start suffering from some very unusual things, > but that is the price we must pay to remain alive. We just have to do > whatever we can to keep on going because we have no other choice. > > My kidneys failed four years ago and I must be on dialysis because it is > keeping me alive until I can hopefully receive a kidney transplant. > > This happened because when I received a bone marrow transplant more then > 25 years all of the radiation and chemotherapy started to destroy my > kidneys, but i'm still alive today because of it. We all have our own > battles in life and that is just the way it is. > > I wish you much health and happiness in this New Year. > > 18's, > > Marty > > On Thu, Jan 8, 2015 at 5:19 AM, sherri swanson <[email protected] > <javascript:>> wrote: > > Hi Marty, > > Happy New Year. I hope you are well. Thanks for the research I enjoyed > article. I could only wish it was as simple as being as side effect of my > TKI. In my case, nothing is ever simple LOL. What I have is called > Autonomic Neuropathy. Basically, my Autonomic Nervous System has > malfunctioned. Here is a link for you to read if you would like to. > > http://en.wikipedia.org/wiki/Dysautonomia > > In a nutshell, Autonomic Neuropathy is a nerve disorder that affects > involuntary body functions, including heart rate, blood pressure, > perspiration and digestion. > > It isn't a specific disease. Autonomic Neuropathy refers to damage to the > autonomic nerves. This damage disrupts signals between the brain and > portions of the autonomic nervous system, such as the heart, blood vessels > and sweat glands. This can cause decreased or abnormal performance of one > or more involuntary body functions. > > Autonomic Neuropathy can be a complication of a number of diseases and > conditions. And some medications can cause autonomic neuropathy as a side > effect. Signs, symptoms and treatment of autonomic neuropathy vary > depending on the cause, and on which nerves are affected. > > L'Chaim, > > Sherri > > > > > On Wed, Jan 7, 2015 at 7:02 PM, Marty Gartenberg <[email protected] > <javascript:>> wrote: > > Hi Sherri, > > I did a little research on your no sweating problem, and it is probably a > side effect of your TKI treatment. > > I also ran across an article which you can read here. It does mention > something about the lack of sweating. It probably has nothing to do with > your problem but maybe you should read it anyway. > > http://en.wikipedia.org/wiki/Fabry_disease > > 18's, > > Marty > > On Wed, Jan 7, 2015 at 5:29 AM, sherri swanson <[email protected] > <javascript:>> wrote: > > Hello, > > I've had CML for 12 years and I've taken Gleevec for those 12 years. I've > also experienced night sweats for many years. At first I was told that it > was due to menopause because of my age at the time. Go figure. When that > was no longer an option, the only thing left was the Gleevec. Since being > dx'd with the CML in 2003, I've been dx'd with other chronic illnesses that > are just as serious. > > With these new illnesses came a new problem. I no longer sweat at all. So > now I have the complete opposite problem. No matter how hot it is, I never > sweat. I a way, it's nice because I'm always cold and I long for very hot > days so I can go out side in the heat. But my oncologist has warned me to > not do it for very long as I have no way to control my body temperature. > Unfortunately, it works the same way with the cold. My body temperature is > a constant 95 degrees. > > So, in answer to your question, yes, the Gleevec does cause night sweats. > It is one of its side effects. Unfortunately, I was not able to find a > remedy for my night sweats other than going to the extreme which I do not > recommend. > > I hope everyone has a good New Year and is healthy. Keep my posted as to > what you find out. Even thought I no long have this issue, I would still > like to be kept in the loop. > > L'chaim > > Sherri > > On Tue, Jan 6, 2015 at 4:19 PM, 'Marcie Goodman' via CMLHope < > [email protected] <javascript:>> wrote: > > Hello, Susan. Gosh, we are just sweating through this it seems. I will > see what may be available naturally, as I don't want hormones either. Sorry > you are experiencing this same problem which I hope to solve. > > Best wishes to you, Roy and your beautiful family for a blessed New Year. > > Marcie > > Sent from my iPad > > On Jan 5, 2015, at 10:17 PM, "'Susan Zimmerman' via CMLHope" < > [email protected] <javascript:>> wrote: > > Dear Marcie, > > I have had night sweats for years, intensifying after my dx in 2005. I > have day sweats, too. When I stand up for more than five minutes to do > anything at all I start profusely sweating from weakness. I think part of > this is from the bosulif, but most is from the stroke weakness and need for > hormones. I will not take artificial hormones and have not gotten the good > kind that are specially made for each person. I totally sympathize with > you Marcie. You might want to go to a naturalist doctor about getting a > test for hormones and then they will make a compound for you of cream that > usually works. Regular md's only know to prescribe the synthetic or horse > hormones which do cause cancer. That's my take on it, hope you find some > relief!!! > > Thanks for your always uplifting posts! Happy New Year to you, too! > Susan F. Zimmerman > > > -----Original Message----- > From: 'Marcie Goodman' via CMLHope <[email protected] <javascript:>> > To: cmlhope <[email protected] <javascript:>> > Sent: Mon, Jan 5, 2015 8:41 am > Subject: [CMLHope] Night Sweats > > Happy New Year, dear friends. I'm wondering if any of you suffer with night > sweats as a side effect of your TKI. I do, and have, over the years of my > treatment. I don't know that it is happening more frequently but the sweats > seem > to be more intense. Is there anything that you know of that will help? > > Many thanks for always being there to offer encouragement and assistance. > > Marcie > > Sent from my iPad > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to [email protected] > <javascript:> > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email > to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > > ... -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
