Hi Richard, That is so true! We've got a saying in Chicago, If you don't like the weather, wait five minutes and it will change. Most times you don't have to wait five minutes. Today the see is shining where I live and temp is about 26 degrees. And there really isn't any wind. So it's not that bad for a January day. I'll take it compared to what we'd had.
You're correct about the Artic Blast. Living in the Windy City as a kid was awful. That wind would whip up and blow all over the place. Now I live out in the burbs and I'm about an hour north of Chicago and it is still windy and cold so I guess I still live in the Windy City. LOL The good thing is I live in a community that takes care of all the snow shovelling and grass cutting for you so I never have to do that stuff again. What a relief. I really don't miss doing that on those cold or very hot days. L'chaim Sherri On Sat, Jan 10, 2015 at 11:25 PM, Richard H <[email protected]> wrote: > Hi Sherry., > > One thing for sure in the middle of US is "The weather will change). Today > was a balmy 36 degrees and a wind chill that was in the mid 20's. The sun > was shining brightly so I walked to the community mail station. The worst > part of living in this part of the US is that when we have the Artic Blast > is a temperature drop of 40-50 degree drop and there is no way to prepare > for it. > > Richard H. > On Saturday, January 10, 2015 at 3:31:32 AM UTC-6, Mosey wrote: > >> Hi Richard, >> >> If it's one thing I got, It's Attitude! At least that's what my mom would >> tell me when I was a teenager. LOL >> >> Sorry to hear about the car. This cold weather can be brutal on a car's >> battery. Glad you were able to get a new and now you’re good to go. >> >> Uor wind chills have been bad too. And we have some open fields so there >> is nothing to block that wind. The other morning it was so cold that the >> water froze in our community and none of had any water for awhile. It's a >> good thing I'm an early raiser and I took my shower while we had water. >> >> Currently, it is -7 with a wind chill of -25 where I live and it isn't >> going to be above zero until 9 am. That's cold. >> >> Stay warm Richard and think spring! >> >> L'chaim, >> >> Sherri >> >> On Fri, Jan 9, 2015 at 11:29 PM, Marty Gartenberg <[email protected]> >> wrote: >> >> Hi Jeanie, >> >> So many things effect your kidneys. The simple ageing factor is just one >> of them. Some medicines will also contribute to kidney function probably >> some of these TKI's. Mine finally gave out from all of the chemotherapy and >> radiation I had more then 25 years ago. >> >> I can make a suggestion: If you are not diabetic try drinking cranberry >> juice. Not the ones that are mixed up with juices like grape juice. Ocean >> Spray has pure cranberry juice so you might want to try it. Even if you are >> diabetic they also make a light cranberry juice. >> >> You know what? You have been through so much that this is only a bump in >> the road for you, and so it is for me. >> >> We have two choices. One, continue to fight and the other is not an >> option for me or you. >> That is why I always end any of my posts with 18's. You just hang in >> there sweetie. >> >> Marty >> >> On Fri, Jan 9, 2015 at 7:55 AM, ICANDOALLTTC via CMLHope < >> [email protected]> wrote: >> >> Hi Sherri, >> I think the tki's contribute to kidney disease. I think that I am in the >> beginning of the disease and I have been on tki's for 11 years now. >> Hang in in there; blessings >> Jeanie<3 >> >> In a message dated 1/9/2015 3:21:09 A.M. Eastern Standard Time, >> [email protected] writes: >> >> Hi Marty, >> >> Thanks for the prayers and right back at ya. >> >> I've been struggling with my kidney disease for many years and didn't >> know it, and then one day voilà the doctors found that there was a problem >> and that I'd been fighting it for years hence the diagnoses of Chronic >> Kidney Disease. And the funny thing is, I'm the only one in my entire >> family that has any of these diseases. My family had its share of health >> issues from heart disease to diabetes. But never anything like what I have. >> All my doctors just shake their heads. I tell them that I like to keep >> things interesting. And what they like is that I have a sense of humor. And >> at this point, it is much better to joke and laugh than to worry and cry. >> While I still take what I have seriously, I'm just happy to be here. >> >> I would be a lot happier if the weather here would warm up. For crying >> out loud it was -5 here yesterday and I was out in it. Now that is one >> hearty person or a very foolish one. The jury is still out on that one. >> Today it is going to be a balmy 8. Woohoo! A heat wave. And, again I'll be >> out in it as I have to go and get a Rx that I need. >> >> L'chaim, >> >> Sherri >> >> On Thu, Jan 8, 2015 at 10:40 PM, Marty Gartenberg <[email protected]> >> wrote: >> >> Dear Sherri, >> >> Yes, you are a fighter and it takes one to know one. I pray that >> everything turns out well for you. >> >> And you are correct that all of the radiation and chemotherapy did >> destroy both of my kidneys. It has been over 25 years that I had my BMT. It >> took many years for my kidneys to fail and that is probably why most >> transplant centers will usually not use total body radiation any more >> unless it is really needed. >> >> 18's, >> >> Marty >> >> On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson <[email protected]> >> wrote: >> >> Hi Marty, >> >> The doctors are trying to treat the different illnesses that are included >> in my condition. There are so many and they do so many different things, >> that I am happy just to to be here. I agree that as we get older there are >> some unusual things that that find us. But in the long run, we all got >> something. I'm a survivor. It's what I do. So when I found out on Monday >> that I have a large mass on my thyroid, I told my doctor I guess we're >> going to be busy this winter. At least I'm not an alarmist. >> >> I too have trouble with my kidneys. Not to the extend that you do, I'm >> working to keep myself at the current level of stage III Kidney Disease. >> Some days, I'm good others, not so much. Lately I've not been doing so >> good and I've had to go and buy new shoes as my feet have been so swollen >> that my current size no longer fit. I wear compression socks all the time >> as well. >> >> My Nephrologist ran some blood work and found that my sodium was very low >> and and so was a bunch of other levels. Now, he is an alarmist. If I even >> look like I'm getting a cold he freaks out. I love him dearly, and I do >> what he says, but I can't sneeze without him making me go see my GP or the >> Oncologist or whatever doctor he thinks I need to see. >> >> I've heard that when you have a BMT and have to have radiation and chemo, >> sometimes kidney failure is possible. How long have you been on the list >> for transplant? >> >> Well, I'm glad that you are here and that you are strong. You're an >> inspiration to all of us. Thanks for all you do Marty. >> >> L'chaim >> >> Sherri >> >> On Thu, Jan 8, 2015 at 10:07 AM, Marty Gartenberg <[email protected]> >> wrote: >> >> Hi again Sherri, >> >> Hopefully you will be able to be treated for this condition. It seems >> that as most of us get older we start suffering from some very unusual >> things, but that is the price we must pay to remain alive. We just have to >> do whatever we can to keep on going because we have no other choice. >> >> My kidneys failed four years ago and I must be on dialysis because it is >> keeping me alive until I can hopefully receive a kidney transplant. >> >> This happened because when I received a bone marrow transplant more then >> 25 years all of the radiation and chemotherapy started to destroy my >> kidneys, but i'm still alive today because of it. We all have our own >> battles in life and that is just the way it is. >> >> I wish you much health and happiness in this New Year. >> >> 18's, >> >> Marty >> >> On Thu, Jan 8, 2015 at 5:19 AM, sherri swanson <[email protected]> >> wrote: >> >> Hi Marty, >> >> Happy New Year. I hope you are well. Thanks for the research I enjoyed >> article. I could only wish it was as simple as being as side effect of my >> TKI. In my case, nothing is ever simple LOL. What I have is called >> Autonomic Neuropathy. Basically, my Autonomic Nervous System has >> malfunctioned. Here is a link for you to read if you would like to. >> >> http://en.wikipedia.org/wiki/Dysautonomia >> >> In a nutshell, Autonomic Neuropathy is a nerve disorder that affects >> involuntary body functions, including heart rate, blood pressure, >> perspiration and digestion. >> >> It isn't a specific disease. Autonomic Neuropathy refers to damage to the >> autonomic nerves. This damage disrupts signals between the brain and >> portions of the autonomic nervous system, such as the heart, blood vessels >> and sweat glands. This can cause decreased or abnormal performance of one >> or more involuntary body functions. >> >> Autonomic Neuropathy can be a complication of a number of diseases and >> conditions. And some medications can cause autonomic neuropathy as a side >> effect. Signs, symptoms and treatment of autonomic neuropathy vary >> depending on the cause, and on which nerves are affected. >> >> L'Chaim, >> >> Sherri >> >> >> >> >> On Wed, Jan 7, 2015 at 7:02 PM, Marty Gartenberg <[email protected]> >> wrote: >> >> Hi Sherri, >> >> I did a little research on your no sweating problem, and it is probably a >> side effect of your TKI treatment. >> >> I also ran across an article which you can read here. It does mention >> something about the lack of sweating. It probably has nothing to do with >> your problem but maybe you should read it anyway. >> >> http://en.wikipedia.org/wiki/Fabry_disease >> >> 18's, >> >> Marty >> >> On Wed, Jan 7, 2015 at 5:29 AM, sherri swanson <[email protected]> >> wrote: >> >> Hello, >> >> I've had CML for 12 years and I've taken Gleevec for those 12 years. I've >> also experienced night sweats for many years. At first I was told that it >> was due to menopause because of my age at the time. Go figure. When that >> was no longer an option, the only thing left was the Gleevec. Since being >> dx'd with the CML in 2003, I've been dx'd with other chronic illnesses that >> are just as serious. >> >> With these new illnesses came a new problem. I no longer sweat at all. So >> now I have the complete opposite problem. No matter how hot it is, I never >> sweat. I a way, it's nice because I'm always cold and I long for very hot >> days so I can go out side in the heat. But my oncologist has warned me to >> not do it for very long as I have no way to control my body temperature. >> Unfortunately, it works the same way with the cold. My body temperature is >> a constant 95 degrees. >> >> So, in answer to your question, yes, the Gleevec does cause night sweats. >> It is one of its side effects. Unfortunately, I was not able to find a >> remedy for my night sweats other than going to the extreme which I do not >> recommend. >> >> I hope everyone has a good New Year and is healthy. Keep my posted as to >> what you find out. Even thought I no long have this issue, I would still >> like to be kept in the loop. >> >> L'chaim >> >> Sherri >> >> On Tue, Jan 6, 2015 at 4:19 PM, 'Marcie Goodman' via CMLHope < >> [email protected]> wrote: >> >> Hello, Susan. Gosh, we are just sweating through this it seems. I will >> see what may be available naturally, as I don't want hormones either. Sorry >> you are experiencing this same problem which I hope to solve. >> >> Best wishes to you, Roy and your beautiful family for a blessed New Year. >> >> Marcie >> >> Sent from my iPad >> >> On Jan 5, 2015, at 10:17 PM, "'Susan Zimmerman' via CMLHope" < >> [email protected]> wrote: >> >> Dear Marcie, >> >> I have had night sweats for years, intensifying after my dx in 2005. I >> have day sweats, too. When I stand up for more than five minutes to do >> anything at all I start profusely sweating from weakness. I think part of >> this is from the bosulif, but most is from the stroke weakness and need for >> hormones. I will not take artificial hormones and have not gotten the good >> kind that are specially made for each person. I totally sympathize with >> you Marcie. You might want to go to a naturalist doctor about getting a >> test for hormones and then they will make a compound for you of cream that >> usually works. Regular md's only know to prescribe the synthetic or horse >> hormones which do cause cancer. That's my take on it, hope you find some >> relief!!! >> >> Thanks for your always uplifting posts! Happy New Year to you, too! >> Susan F. Zimmerman >> >> >> -----Original Message----- >> From: 'Marcie Goodman' via CMLHope <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Mon, Jan 5, 2015 8:41 am >> Subject: [CMLHope] Night Sweats >> >> Happy New Year, dear friends. I'm wondering if any of you suffer with night >> sweats as a side effect of your TKI. I do, and have, over the years of my >> treatment. I don't know that it is happening more frequently but the sweats >> seem >> to be more intense. Is there anything that you know of that will help? >> >> Many thanks for always being there to offer encouragement and assistance. >> >> Marcie >> >> Sent from my iPad >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email >> to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to CMLHope-u...@ >> googlegroups.com >> For more options, visit this group at http://groups.google.com/ >> group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to CMLHope-u...@ >> googlegroups.com >> For more options, visit this group at http://groups.google.com/ >> group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to CMLHope-u...@ >> googlegroups.com >> For more options, visit this group at http://groups.google.com/ >> group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to CMLHope-u...@ >> googlegroups.com >> For more options, visit this group at http://groups.google.com/ >> group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to CMLHope-u...@ >> googlegroups.com >> For more options, visit this group at http://groups.google.com/ >> group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to CMLHope-u...@ >> googlegroups.com >> For more options, visit this group at http://groups.google.com/ >> group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to CMLHope-u...@ >> googlegroups.com >> For more options, visit this group at http://groups.google.com/ >> group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to CMLHope-u...@ >> googlegroups.com >> For more options, visit this group at http://groups.google.com/ >> group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to CMLHope-u...@ >> googlegroups.com >> For more options, visit this group at http://groups.google.com/ >> group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> >> ... > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
